Empowering Families The “Step Approach Model” for Effective Advocacy

This article argues that families of individuals with ASD can benefit greatly from learning the “Step Approach Model” for effective advocacy. Families of children, teens and adults with ASD (and related diagnoses) sometimes lack the necessary skills and confidence to raise concerns comfortably and constructively with human service systems. Yet, families sometimes have more real political “clout” in affecting change in educational, developmental, social service and health systems than they realize at first (Schields, 1987). When families raise concerns, they stand outside of existing systems. They have access to sources of influence (e.g., mainstream and social media, top government or bureaucratic decision-makers, self-help and advocacy groups) not ordinarily available to people employed by service organizations.