Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.) The text of each posting is presented as it was submitted by the researcher.

Please see the research participation opportunities below. 

York University - Ready2Work Phase 2

In collaboration with the York ASD Partnership, we developed a website to support the employment needs of people on the autism spectrum.

The goal of this project was to develop an online platform that is both functional and user-friendly. 

If you are a self-advocate with ASD who is interested in or has attempted to secure employment, a caregiver who has supported someone with ASD who is interested in or has attempted to secure employment, or a professional who supports people with ASD in vocational or employment services, we would love the opportunity for you to provide feedback on our online vocational/employment platform.

If you choose to participate, we will ask you to join us for a virtual research session where you will be asked to complete some questionnaires, explore the website, and provide feedback about your experiences with it.

This session will take approximately 60-90 minutes and will be booked at a time convenient for you. As a token of appreciation, we will send you a $25.00 gift card for either Starbucks or Amazon.

If you would like to participate and/or you would like to find out more about the Ready2Work Research Project, please email Jean Phan at jp17ka@brocku.ca  

Thanking you all in advance,  

The Ready2Work Team

 

Open until December 2021

University of Toronto - Measuring Physical Literacy in Adults with Intellectual Disabilities using the PL-C Quest

I am currently recruiting adults (18+) with an intellectual/developmental disability and their parents/guardian to complete a survey about their physical activity and movement.

The survey itself is 30 questions long and asks questions all about how an individual feels they move and engage in sport. Question range from how do you feel about your ability to jump/leap/skip to how much do you like playing games in groups. The purpose of this project is to identify whether adults with intellectual/developmental disabilities are able to appropriately gage their ability level.

All of those who complete the survey will receive a $10.00 amazon gift card. The total time requirement for participants ranges from 15-30 minutes.

For more information and to participate, please email Laura St. John at l.stjohn@mail.utoronto.ca

The study has ethics approval from the University of Toronto Research Ethics Board (Ethics Protocol #40698).

 

Open until December 2021

York University - Understanding Perspectives on Health Behaviours Among Parents of Children, Youth, and Young Adults with an Intellectual Disability or Autism

Researchers from York University are looking for parents of children, youth, and young adults with an intellectual disability or autism to participate in a study investigating parental perspectives on health behaviours. As a participant, you will be asked to complete a series of questionnaires. You will receive a $25 honorarium for your participation distributed across the three stages of the study.

If you are interested, please complete the following Screening Questionnaire to confirm your eligibility: https://www.surveymonkey.com/r/DMYMPBT

For further details: Please contact kdisim@yorku.ca

 

Open until December 2021

Understanding experiences of suicidal thoughts and behaviours among autistic youth

Are you an autistic young person/youth with autism who has experienced suicidal thoughts or attempts in the past? You may be eligible to participate in a study to help us understand the experiences of thoughts or behaviours related to suicide if you are:

  1. Diagnosed with autism
  2. Between the ages of 13 and 24 years
  3. Have experienced thoughts or behaviours related to suicide

You would participate in two online interviews about your experiences. Interviews will be done together with your parent/guardian.

To participate or for more information, please contact Patrick at patrick.jachyra@camh.ca,  416 535-8501 ext. 37829

Study participation is completely voluntary, and you will be compensated for your time.

If you, or someone you know has suicide-related concerns, please call the Canada Suicide Prevention Helpline: 1-833-456-4566.

You can find other crisis and support services at: camh.ca/en/suicide-prevention/get-help For more information about programs and services at CAMH please visit www.camh.ca or call 416-535-8501 or 1-800-463-6273.

 

Open until December 2021

Healthcare Access Survey - Autism and Official Language Minorities

Dr. Aparna Nadig's pop lab invites you to take part in an online survey on healthcare access for people on the autism spectrum!

Our Goal: To learn about possible barriers to accessing healthcare services experienced by people on the autism spectrum and their families

Who? Adults (18 or older) in Canada who:

  • self-identify as autistic and can complete a written survey
  • care for or have cared for, a family member on the spectrum (including non or minimally speaking children and individuals with all levels of language and intellectual ability

What's Involved? 

  • Online study: need to have a computer and internet access
  • Complete a survey that should take about 30-50 minutes
  • A $15 gift card will be offered for your participation

If you are interested in participating: please email poplab.scsd@mcgill.ca using the subject line: Healthcare Access Survey

The Queen’s Visual Cognition Laboratory - Investigating the role of camouflaging in Autism Spectrum Disorders

The Queen’s Visual Cognition Laboratory is seeking Autistic adults (e.g., Autism Spectrum Condition/ Disorder, Autism, Asperger’s Syndrome, Pervasive Developmental Disorder) for an online study on their lived experiences navigating social situations. This study will involve viewing videos and answering questions about the videos, your personal experience navigating social interactions, your mental health and some basic demographic information. Participants must be 18 years of age or older and be able to read and write in English. The study takes approximately 45 minutes to complete. To participate, click on this link https://mili2nd.co/i6zb. Prize draws (1 in 25 chance for a $25 gift card) are available.  

For more information about the study, please contact the Queen’s Visual Cognition Laboratory at qvcl.sub@gmail.com. Be sure to mention the FETTUCCINE study. All inquiries are completely confidential. 

The Chicago School of Professional Psychology - The Effect of a Parent Mediated Toilet Training Program on Children's Toileting Skills Delivered via Telehealth

Looking for Caregiver and Child Participants

Child must have a diagnosis of autism, between 2.5 – 8 years of age and repeat a minimum of 2 spoken words or actions Child must reside with the primary caregiver for the full duration of the 12 - week study

Time commitments for at least one caregiver:

  • A maximum of two, 2-hour telehealth training sessions which includes video recording of participants while practicing the steps with a doll (that you could keep), to then transfer the skills with your child
  • A minimum of 2-hours of support on the first day of training your child
  • Once a week, 20-minute telehealth follow-up consultations, for a maximum of 12 weeks 
  • Supporting your child daily as the primary caregiver, for a maximum of 12 weeks
  • Talking and forwarding data daily

Materials required:

  • Access and experience in using a computer/iPad with a built-in camera, email and internet speed of 25 Mbps

If interested, please contact Natalie Paquet Croteau, M.A., BCBA at 1-705-618-4448 or by email at: ncroteau@ego.thechicagoschool.edu

The Chicago School of Professional Psychology

Organizational Benefits of Neurodiversity

Investigators: Lorne Hartman & Braxton Hartman
Research question: Do employees with autism bring new perspectives to employers that enhance organizational performance?
Eligibility requirements:
- Are you on the spectrum?
- Do you work at a job more than 5 hours per week?
- Are you over the age of 18?
- Do you have a stable internet connection?

If you are interested in participating and meet these requirements, follow this link to the survey:  Qualtrics Survey | Qualtrics Experience Management 

The survey will take 20-30 minutes to complete.

If you have questions, contact us at: lhartman@schulich.yorku.ca

 

Open until March 31, 2022

Cognitive Rehabilitation (Mega Team) and its effects on emotional and behavioural regulation in ADHD, ASD, and CHD

The Department of Psychiatry at The Hospital for Sick Children (SickKids) is undertaking an exciting new research study where we will be looking to see if a video game can help improve behavioural control and working memory in kids. 

Who Can Participate?: You can help us out with our study if you are/or have a child with a diagnosis of either Attention Deficit Hyperactive Disorder (ADHD), Autism Spectrum Disorder (ASD), and/or a Congenital Heart Disease/Defect (CHD), are between 6-12 years of age, willing to come to SickKids for 3 study visits, and are willing to play the video game at home for 5 weeks. Compensation will be provided. 

Interested in Participating?: If you are interested in participating in this study and/or would like more information, please contact Taha Arshad - mega.team@sickkids.ca or 416-813-8210 

 

Open until December 2021

Deakin Universtiy - Romantic Relationships Study

Researchers at Deakin University are interested in what helps and what damages romantic relationships among autistic individuals and among non-autistic individuals. We believe this may help inform a program to support autistic people to develop better romantic relationships.

If you are at least 18 years old and:

-You are autistic (you do not have to have current or previous relationship experience to take part); or

- You are currently in or previously had a relationship with an autistic individual,

We ask if you would participate in an online survey about your romantic and possibly sexual relationship experiences, as well as your personality traits.

This survey may take 30-40 minutes to complete.

For more information on this research, please contact Ying at ryew@deakin.edu.au

This study has received Deakin University ethics approval (reference number: 2020-344).

Enter the draw to win 1 of 20 Amazon gift cards valued at $20 (AUD) upon completion of this survey!

Feel free to share this with other people who may also be interested in participating!

University of Toronto - Women with Disabilities Seeking Care, Health and Health Care Justice

Are you a disabled woman in Ontario between 19-64 years of age?

Are you interested in discussing your health care experiences?

If you are, U of T would like to hear from you!

You are invited to participate in a 2-4 hour virtual interview where you will be asked about your experiences accessing health care.

This is for a PhD research study titled: Women with Disabilities Seeking Care, Health and Health Care Justice.

 

To find out more about this study, please contact:
Terri-Lynn Langdon, PhD (C)
University of Toronto, Ontario Institute for Studies in Education, Social Justice Education
Email: terrilynn.langdon@mail.utoronto.ca
Phone: 647-520-2558

 

For more information, please contact:
Dr. Tanya Titchkosky, Disability Studies
University of Toronto, Ontario Institute for Studies in Education, Social Justice Education
Email: tanya.titchkosky@utoronto.ca

McMaster University - Targeted Cognitive Intervention: Assessment and Plasticity in Autism Spectrum Disorder (ASD)

McMaster University along with Hamilton Health Sciences and McMaster Children's Hospital is recruiting children with Autism Spectrum Disorder (ASD) who are between the ages of 3-7 years old to take part in an intervention research study.

Background Information:
This study will test a new computer-based program called “A Computerized Cognitive Intervention Solution” (ACCIS), which aims to improve the way children with ASD think and solve problems. If successful, the program may provide long-term benefits to children with ASD.

Who Can Participate in the Study?
Any children with ASD between the ages of 3-7 years can take part in this study. Participation entails two or three 1-hour assessment sessions completed remotely and access to an iPad or iPhone.

If you are interested in participating in this study or would like to learn more about this opportunity, please contact  Dr. Diana Parvinchi at: dparvinchi@mcmaster.ca, or Dr. Geoffrey Hall at (905)525-9140, extension 23033.

Researchers:
Dr. Geoffrey Hall, PhD.
Dr. D. Parvinchi, Ph.D.

Dr. Caroline Roncadin, C.Psych.
Dr. T. Bennett, MD
Dr. Georgiades, PhD

Open until January 2022

University of Calgary - Study with Chinese Immigrants with Autism in Canada

The University of Calgary is conducting a study to learn about the first-hand experiences of Chinese immigrants who have been diagnosed with autism in Canada. The purpose is to better understand the perspectives of the immigrant community in Canada who have undergone a developmental disability diagnosis, as well as use the information to develop strategies and/or provide insight for professionals and clinicians who are considering diagnosing a Chinese individual with autism. This study is conducted entirely online.

To participate in this research project, you must:

•  Be aged 16 years or older, up to 35 years old.

•  Be an immigrant of Chinese descent who is now living in Canada.

•  Have autism, including Asperger syndrome, or are actively in the process of obtaining a formal diagnosis in Canada

•  Be verbally fluent and understand a sufficient level of English or Mandarin Chinese

•  Be able to provide informed consent.

Participation involves a short online demographic survey (in either English or Chinese), filling out online consent forms, and an online (Zoom) interview about your experiences of receiving an autism diagnosis. The interview should take about 1 to 1.5 hours of the participant’s time. All participants will receive a $25 gift card of their choice.

If you would like more information about the study or are interested in participating, please contact Cecilia (Cici/Qian Qian) Ye at qqye@ucalgary.ca.

 

Please see attached for more info - English Version - Chinese Version
 

Social Processes Initiative in Neurobiology of Autism-spectrum and Schizophrenia-spectrum Disorders (SPIN-ASD)

Who can participate?

Individuals aged 16-35 with an Autism Spectrum Disorder diagnosis, who have not been diagnosed with intellectual disability.

 

What is the study about?

We are interested in understanding more about how the brain works in ASD, and how brain structure and function relate to behavior. We hope this knowledge informs treatment development. Your participation would go a long way to helping us understand more about ASD and mental health.

 

What do I have to do and how much time would it take?

If you decide to participate, you would take part in screening and clinical assessments at CAMH. They will involve demographic questions, a urine sample, and some social thinking and decision making tests. This is an imaging study, which means you would also complete an MRI brain image scan. Completing all of the components of this study would take 12 hours over 3-4 days.

 

Would I be compensated for my time?

Participants will receive an honorarium in appreciation for their time. If you decide to withdraw before the study end, you would be paid for the study visits you completed.

 

Who do I contact if I have questions or I want to participate in the study?

The Study Investigator is Dr. Stephanie Ameis. If you have any questions about the study or would like to participate, please contact our Research Analyst:

Enea Koxhioni

Phone: 416-535-8501 ext. 39140

Email: enea.koxhioni@camh.ca

Holand Bloorview - Aging in Autism Spectrum Disorders: Changes in Brain Structure and Function

Are you an autistic adult /adult with Autism Spectrum Disorder ( ASD)? Consider participating in Holland-Bloorview's study

What is this study about?
This study will help develop a better understanding of autistic adults/ adults with ASD . It will explore aging and brain function amongst autistic adults/adults with ASD.

Who can participate?
We are looking for adults:
-40 years and older
-Have an ASD diagnosis
-With normal or corrected to normal vision and hearing

What’s involved?
-You will be asked to answer questionnaires, undergo cognitive assessments, and have brain scans
-Participation involves two sessions one initial session and another after 4 years
-You may also provide a blood sample for genetic analysis (optional)
- Each session will take approximately 2 days.

Participants will receive $100 per study session as reimbursement. You can also request the results of your testing.

Principal Investigator: Dr. Evdokia Anagnostou

To ask questions or sign up, please contact: Daman Rehal 416-425-6220 ex. 3740 or drehal @hollandbloorview.ca

U of Guelph - Parental Self-Efficacy In Parents Of Children With Autism Spectrum Disorders

Primary caregivers of youth with autism aged 6-18 and who live in Ontario, Canada are invited to participate in a 30-minute online survey. Participants will be entered into a draw for 1 of 15 $20 gift cards.

The research project is being conducted under the direction of Rita Abdel-Baki and Dr. Kristel Thomassin at the University of Guelph.
 
What is this study about?
This study is about parental self-efficacy, or how well a parent feels able to meet their child’s needs. We hope to learn more about how parental self-efficacy in parents of children with autism spectrum disorders is related to parent (for example, parent stress, parent mental health, and the co-parenting relationships), child (for example, children’s symptom severity), and systemic factors (for example, what supports are available to parents).
 
Who is eligible to participate?
To be eligible to participate, you must be a primary caregiver of a child 6-18 years old with a diagnosis of an autism spectrum disorder, including autistic disorder, Asperger’s syndrome, or pervasive developmental disorder – not otherwise specified (PDD-NOS). You must live in Ontario, Canada, and be able to read, write, and speak in English.

 

If you have any questions or concerns about the research, please contact Rita Abdel-Baki, MSc, MA, at rabdelba@uoguelph.ca or Dr. Kristel Thomassin, Ph.D., C.Psych., at Kristel.Thomassin@uoguelph.ca.

 

PSE and ASD Flyer - Fathers and Caregivers