Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.)

Please see the research participation opportunities below. 

Mothering and Neurodevelopment Study

Researchers at the University of Manitoba are looking for mothers of children (boys or girls), between 6-11 years of age, with Autism Spectrum Disorders who are interested in completing a brief online survey investigating the strengths of these families as part of a new and exciting study!

You can participate by clicking or copying the following link:


https://umanitobapsych.az1.qualtrics.com/jfe/form/SV_1RFE23ZPifneXwp

For more information about this opportunity, please contact Dr. Jen Theule at Jen.Theule@umanitoba.ca

You can also visit our website for more information about our past and present research activities at 
www.fdpl.ca. Feel free to share this notice with others who may be interested!

Participants would be able to enter a draw to win one of ten $50 Amazon Egiftcards

Secret Agent Society: Operation Regulation – Transdiagnostic Trial

Do you have a child between 8-13 years of age with a neurodevelopmental disability?

We invite you to participate in a research study: Secret Agent Society: Operation Regulation – Transdiagnostic Trial. 

What is the research about?

This study aims to evaluate whether a cognitive behavioural intervention, Secret Agent Society: Operation Regulation, can help youth with neurodevelopmental disabilities cope with their emotions and handle the day-to-day stressors in their lives. By neurodevelopmental disability, we mean a diagnosis of autism or autism spectrum disorder, a learning disability, attention-deficit hyperactivity disorder (ADHD), or cerebral palsy.

What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills.

You and your child will also participate in research to evaluate the effectiveness of the program.

There is no cost to the program, except for parking and travel to the university.

I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator, at jonweiss@yorku.ca.

You can also visit our website: https://ddmh.lab.yorku.ca/secret-agent-society-operation-regulation-transdiagnostic-trial/

Limited space is available, so families will be contacted on a first come, first serve basis.

 

This study has been approved by the York University Ethics Board.

The Social Meanings and Identities of Adults Diagnosed with High Functioning Autism Spectrum Disorder

The purpose of this study is to explore the social meanings and identities of adults diagnosed with “High Functioning Autism Spectrum Disorder” or “Asperger Syndrome.” The objective of this study is to explore how adults make sense of their self and identity in relation to their new diagnosis, as well as how they mediate their social and occupational relationships.

If you are 18 years or older and have been diagnosed during adulthood with “High Functioning Autism Spectrum Disorder” or “Asperger Syndrome,” we would be interested in hearing from you. In participating, we will ask you to take part in an interview that takes approximately 30-60 minutes to complete. The interview may be administered in person or alternatively through telephone, Skype, electronic chat, or email, at your convenience. Participants will receive a $100 gift card to amazon.ca in appreciation for their time. This study has been reviewed and received ethics clearance through the Lakehead University Research Ethics Board.

If you are interested in participating in this study or have any questions, please contact: AutismStudy2019@gmail.com

A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD

Have you/ your child been diagnosed with an autism spectrum disorder? Do you/ your child have social difficulties and/or repetitive behaviours?    Are you/ your child located near Toronto, Kingston, Hamilton or London, Ontario? You/ your child may be eligible to participate in a clinical trial of a medication called arbaclofen!

Who can participate: Children and teens between 5-17 years of age with a diagnosis of an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)

What's involved: The trial will last a total of 18 weeks (4.5 months) and involves taking either arbaclofen or a placebo, as a meltaway tablet, 1-3 times per day for 18 weeks. You and your child will first be asked to come in for a screening session; through talking with you/ your child and completing some assessments, we will determine if you/ your child meets eligibility criteria.

Visits will occur at participating sites: Holland Bloorview, Queen’s University, McMaster University or Lawson Research Institute.  Visits will take place every 2-4 weeks while you/ your child are taking the drug or placebo. This study also has an optional continuation part, which means that all participants will be able to take arbaclofen at the end of the 18 weeks. The same tests and procedures will be followed that were followed during the main study.

The ultimate goal of this study is to find out if arbaclofen is helpful in improving social function. 

Participants will receive a small token of appreciation in the form of a $20.00 gift card to thank them for their time

Deadline: The study began in January 2019 and recruit for up to 18 months.

Interested in participating? If you / your child are interested in participating in this study or have additional questions, please contact the site closest to you and the study staff will get back to you shortly. 

Toronto: Leanne Ristic at 416-425-6220 ext. 6321 or lristic@hollandbloorview.ca

Kingston: Jennifer Lalonde at  613-548-4417 ext. 1111 or jennifer.lalonde@queensu.ca

Hamilton: Alessia Greco at  905-525-9140 ext. 21261 or algreco@mcmaster.ca

London: Ahsan Ahmad at 519-685-8500 ext. 74906 or ahsan.ahmad@lhsc.on.ca