Research Participation Opportunities

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Understanding camouflaging in autistic adults

Inviting Autistic Adults for an online research survey to understand how individual and social factors influence camouflaging/masking and well-being. 

The survey will take around 45-60 minutes of your time. 

To register your interest, please go to https://tinyurl.com/uwacamouflagingstudy

Investigators: Assoc/Prof Iliana Magiati & Dr Diana Tan (email:uwacamouflagingstudy@gmail.com)

Understanding Perspectives on Health Behaviours Among Parents of Children, Youth, and Young Adults with an Intellectual Disability or Autism

Researchers from York University are looking for parents of children, youth, and young adults with an intellectual disability or autism to participate in a study investigating parental perspectives on health behaviours. As a participant, you will be asked to complete a series of questionnaires. You will receive a $25 honorarium for your participation distributed across the three stages of the study.

If you are interested, please complete the following Screening Questionnaire to confirm your eligibility: https://www.surveymonkey.com/r/DMYMPBT

For further details: Please contact kdisim@yorku.ca

Understanding experiences of suicidal thoughts and behaviours among autistic youth

Are you an autistic young person/youth with autism who has experienced suicidal thoughts or attempts in the past? You may be eligible to participate in a study to help us understand the experiences of thoughts or behaviours related to suicide if you are:

  1. Diagnosed with autism
  2. Between the ages of 13 and 24 years
  3. Have experienced thoughts or behaviours related to suicide

You would participate in two online interviews about your experiences. Interviews will be done together with your parent/guardian.

To participate or for more information, please contact Patrick at patrick.jachyra@camh.ca,  416 535-8501 ext. 37829

Study participation is completely voluntary, and you will be compensated for your time.

If you, or someone you know has suicide-related concerns, please call the Canada Suicide Prevention Helpline: 1-833-456-4566.

You can find other crisis and support services at: camh.ca/en/suicide-prevention/get-help For more information about programs and services at CAMH please visit www.camh.ca or call 416-535-8501 or 1-800-463-6273.

The Relationships Between Language Preferences, Autism Acceptance, and Mental Health

Is it ‘person with autism’ or ‘autistic person’? We want to learn how language preferences about autism develop and how they relate to autism acceptance and mental health. This study was developed in collaboration with autistic people / people with autism.

You will complete an online survey about your language preferences, your involvement in autistic and autism communities, how you feel in social situations, and your mental health (anxiety, depression, and suicidality), and your basic background information.

The survey has 3 parts:

  1. 90 minutes,
  2. 60 minutes, and  
  3. 60 minutes long.

After you complete each part of the survey, you can enter a draw to win a $100 visa gift card (total 3 entries).

Who Can Participate?

  • Adults (age 16+) who self-identify as an autistic person / person with autism;
  • Parents, caregivers, partners, friends, and community members of people with autism / autistic people
  • Professionals, students and volunteers who work with autistic people / people with autism.

For more information or if you are interested in participating in this study, please contact the Autism and Developmental Disabilities Lab (ADDL) at addl@sfu.ca or call at 778-782-6746.

Social Problem Solving and Communication: An Examination of Individual Differences

Help us lean about differences in Social Problem Solving and Communications skills!

Contribute to research on how social problem solving and communications skills vary as a function of personality traits, and how they may vary between autistic and neurotypical adults.

Who?

  • Autsitic and neurotypical adults
  • 18-35 years old
  • Speaks English or French fluently

What is required?

  • A desktop or laptop computer with webcam and internet access
  • Two approximately 1.5 hr sessions over video conference
  • Completion of:
    • An interactive task
    • 2 computerized tasks
    • 2 standardized tests
    • Questionnaires

You will receive a $15 gift card for your participation.

If interested, please contact: PoP Lab, Directed by Dr. Aparna Nadig

Email: poplab.scsd@mcgill.ca

Website: poplab.mcgill.ca

Measuring brain synchrony between children and their parents while drawing pictures together

Does your child enjoy drawing pictures and tablet computer games? Consider participating in our study! We are understanding how parents and children synchronize brain activity while drawing pictures together. This will be done by measuring your brain activity using near-infrared spectroscopy (NIRS), which is non-invasive and has no known risks, while drawing.

Who can participate? Children aged 7-18 (with or without ASD) living in the Greater Toronto Area and their parent or primary caregiver who is also willing to participate. Participants must have mobility of their dominant hand/torso and stay focused on a task for at least 2 minutes. You must be able to understand English and have normal/ corrected-to-normal vision/hearing. Adult participants must have no history of neurological, cardiopulmonary, respiratory, or drug/alcohol related conditions as well as traumatic brain injury or concussion.

What’s involved? You and your child will participate in one, 1-hour session at the Holland Bloorview Research Institute. Besides drawing pictures, you will play ‘Simon Says’ to help us understand how body movements affect brain signals. You will also be asked to complete qualitative questionnaires that measure you and your child’s social abilities. Findings from this study could further our understanding how ASD affects social processing areas of the brain and may point to new biomarkers for diagnosing. You will be given a small gift card as a token of appreciation for your time.

Interested in Participating? If you are interested or have additional questions, please contact Karly Franz at kfranz@hollandbloorview.ca.

 

Recruitment Start Date: June 23, 2021

Recruitment End Date: September 30, 2021

Healthcare Access Survey - Autism and Official Language Minorities

Dr. Aparna Nadig's pop lab invites you to take part in an online survey on healthcare access for people on the autism spectrum!

Our Goal: To learna bout possible barriers to accessing healthcare services experienced by people on the autism spectrum and their families

Who? Adults (18 or older) in Canada who:

  • self-identify as autistic and can complete a written survey
  • care for or have cared for, a family member on the spectrum (including non or minimally speaking children and individuals with all levels of language and intellectual ability

What's Involved? 

  • Online study: need to have a computer and internet access
  • Complete a survey that should take about 30-50 minutes
  • A $15 gift card will be offered for your participation

If you are interested in participating: please email poplab.scsd@mcgill.ca using the subject line: Healthcare Access Survey

Investigating the role of camouflaging in Autism Spectrum Disorders

The Queen’s Visual Cognition Laboratory is seeking Autistic adults (e.g., Autism Spectrum Condition/ Disorder, Autism, Asperger’s Syndrome, Pervasive Developmental Disorder) for an online study on their lived experiences navigating social situations. This study will involve viewing videos and answering questions about the videos, your personal experience navigating social interactions, your mental health and some basic demographic information. Participants must be 18 years of age or older and be able to read and write in English. The study takes approximately 45 minutes to complete. To participate, click on this link https://mili2nd.co/i6zb. Prize draws (1 in 25 chance for a $25 gift card) are available.  

For more information about the study, please contact the Queen’s Visual Cognition Laboratory at qvcl.sub@gmail.com. Be sure to mention the FETTUCCINE study. All inquiries are completely confidential. 

READYorNot Brain-Based Disabilities Trial

WE NEED YOUTH VOICES!

We are now recruiting from Ontario, Alberta, New Brunswick and Nova Scotia.  $40 in gift cards for eligible participants ($20 after each online study visit).

We need youth aged 15-17 with Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida to help us test a new app about health care transitions. Right now we need youth from Nova Scotia, New Brunswick, Alberta and Ontario, but we’ll be looking for youth from other provinces soon too.

To join the study, contact: galuppi@mcmaster.ca

What is this study about?

The MyREADYTransitionTM BBD App was created to help youth prepare for health care transition. That’s when youth make the change from getting services from the children’s health care team, the children’s hospital or the children’s treatment centre to looking after their own health in adult services. We hope the app will help youth with things like learning about their health, knowing what questions to ask and when to ask for help.

Contact: Barb Galuppi or Nadilein Mahlberg Telephone: 905-525-9140, extension 27852 galuppi@mcmaster.ca

Who is behind this research?

This research is run by McMaster University (Dr. Jan Willem Gorter) and McGill University (Dr. Ariane Marelli) in collaboration with Hamilton Health Sciences.

This study has been reviewed by the Hamilton Integrated Research Ethics Board.

Learn more about this study at: https://www.child-bright.ca/readyornot

The Effect of a Parent Mediated Toilet Training Program on Children's Toileting Skills Delivered via Telehealth

Looking for Caregiver and Child Participants

Child must have a diagnosis of autism, between 2.5 – 8 years of age and repeat a minimum of 2 spoken words or actions Child must reside with the primary caregiver for the full duration of the 12 - week study

Time commitments for at least one caregiver:

  • A maximum of two, 2-hour telehealth training sessions which includes video recording of participants while practicing the steps with a doll (that you could keep), to then transfer the skills with your child
  • A minimum of 2-hours of support on the first day of training your child
  • Once a week, 20-minute telehealth follow-up consultations, for a maximum of 12 weeks 
  • Supporting your child daily as the primary caregiver, for a maximum of 12 weeks
  • Talking and forwarding data daily

Materials required:

  • Access and experience in using a computer/iPad with a built-in camera, email and internet speed of 25 Mbps

If interested, please contact:

Natalie Paquet Croteau, M.A., BCBA
1-705-618-4448
or by email at: ncroteau@ego.thechicagoschool.edu

The Chicago School of Professional Psychology

Organizational Benefits of Neurodiversity

Investigators: Lorne Hartman & Braxton Hartman
Research question: Do employees with autism bring new perspectives to employers that enhance organizational performance?
Eligibility requirements:
- Are you on the spectrum?
- Do you work at a job more than 5 hours per week?
- Are you over the age of 18?
- Do you have a stable internet connection?

If you are interested in participating and meet these requirements, follow this link to the survey:  Qualtrics Survey | Qualtrics Experience Management 

The survey will take 20-30 minutes to complete.

If you have questions, contact us at: lhartman@schulich.yorku.ca

Members of the Disability Community and their Perceptions of Disability Representation in the Media

Do you Enjoy Watching and Talking about Television and Movies with People?

If you do, please consider joining this research study. In this study you will be watching a media representation that features a character with your disability, and then participating in a focus group with other individuals with the same disability to talk about what you watched.

This study is being conducted by Stephanie J. Cragg a Ph.D. student in fulfillment of her dissertation requirement under the supervision of Dr. Kathryn. D. Lafreniere at the University of Windsor.

To be eligible:

  • You must live in Canada or the United States
  • You must have one of these three diagnoses from a medical professional and have been diagnosed for over 6 months
    • A diagnosis of Turner Syndrome
    • A mobility impairment requiring a wheelchair for at least 80% of the day
    • A diagnosis of Autism needing minor supports
  • You must be 18 years of age or older
  • You must have an internet connection and a computer or tablet with video and microphone capabilities, or have a phone

Participants will receive a $30 Amazon electronic gift card for their participation.

To find out more information about the study, please contact Stephanie J Cragg at cragg2@uwindsor.ca.

This research has been cleared by the Research Ethics Board of the University of Windsor

 

Please share this information if you know of anyone who may be interested in participating in this study.

Autistic Self-Advocacy and Safety Online

My name is Jessica. I am an autistic researcher at Carleton University. I am looking for autistic adults to give feedback on my study about autistic self-advocacy and safety online. I want to make sure that it is accessible, relevant, and impactful for the autistic community.

What you will be asked to do:

1) Meet with me for 10 minutes over videoconference (e.g., Skype) to get more information about the study

2) Review some of the study’s documents (e.g., survey, consent forms)

3) Fill out a short online survey about your opinions on the documents and the study

4) Meet with me again for 1 hour online to give more detailed feedback

This will take no more than 2 hours of your time. You can do both meetings with audio only (no camera) or instant messaging.

Eligibility:

I am looking for adults (18 years or older) who:

1) Have an autism diagnosis or self-identify as autistic,

2) Are able to understand and communicate in English with or without support, and,

3) Use the Internet to share their experiences as an autistic person, and to promote autistic people's rights.

Compensation:

You will receive $10 (e-transfer or gift card) to read the documents and fill out the survey, and another $30 for the 1-hour meeting.

How to sign up: If you are interested in participating, please email me: jessica.rocheleau@carleton.ca.

The study is supervised by Dr. Sonia Chiasson and Dr. Kasia Muldner, and received clearance from Carleton University’s Research Ethics Board (#113229

Self-compassion and emotion regulation in Autistic adults

Self-compassion is a healthy way of relating to ourselves. Self-compassion involves being warm and understanding toward ourselves when we suffer, fail or feel inadequate, rather than ignoring our pain or being too self-critical. Research has shown a strong relationship between self-compassion and mental health and wellbeing. However, no research study has examined this in people with autism.

Researchers at Autism Spectrum Australia are conducting the first study on self-compassion in autism. The aim of this study is to understand whether Autistic adults’ capacity to be self-compassionate and ability to regulate emotions impact their mental health and psychological wellbeing. This study was designed with input from Autistic researchers. Findings of this study will help us decide if developing self-compassion is relevant and important for Autistic individuals to improve mental health.

Adults with and without autism are invited to complete an online survey. All participants will go into a draw to receive one of three $100AUD eVoucher. Participants may also be invited to be interviewed via zoom.

Contact person: Ru; Email: ryingcai@autismspectrum.org.au

Website: https://www.autismspectrum.org.au/about-autism/our-research/our-research-program/self-compassion

Recruitment has started. Recruitment end date is July 31, 2021.

Cognitive Rehabilitation (Mega Team) and its effects on emotional and behavioural regulation in ADHD, ASD, and CHD

The Department of Psychiatry at The Hospital for Sick Children (SickKids) is undertaking an exciting new research study where we will be looking to see if a video game can help improve behavioural control and working memory in kids. 

Who Can Participate?: You can help us out with our study if you are/or have a child with a diagnosis of either Attention Deficit Hyperactive Disorder (ADHD), Autism Spectrum Disorder (ASD), and/or a Congenital Heart Disease/Defect (CHD), are between 6-12 years of age, willing to come to SickKids for 3 study visits, and are willing to play the video game at home for 5 weeks. Compensation will be provided. 

Interested in Participating?: If you are interested in participating in this study and/or would like more information, please contact Taha Arshad.

E-mail: mega.team@sickkids.ca

Phone: 416-813-8210 

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

The goal of this study is to test two versions (group coaching & self-managed) of an online program designed for parents of children with neurodevelopmental disabilities who are dealing with behaviours that negatively impact the activities of daily life. Developed with parents of neurodiverse children, the program consists of 11 skill-based sessions with demonstration videos, audio clips, exercises, a resource webpage and a Parent-to-Parent online group.

Who can participate: Primary caregivers of children between 3-14 years old who are diagnosed with Autism Spectrum Disorder and would like help managing behaviours that are having a negative impact on the activities of daily life.

Visit www.crfh.ca/neuro for more details.

You may complete up to 2 hours per week of the online program and group coaching for 11 weeks. Participants will also complete online questionnaires and a telephone interview 3 times during the 10 month study. A $50 honorarium is provided for completing each of the questionnaires (up to $150).

To apply, go to: https://mystudies.ca/studies/neuro

Recruitment will continue until June 2021. If you have any questions, please email sf.neuro.study@iwk.nshealth.ca

This research is hosted at the IWK Health Centre and has been approved by ethics boards at the IWK Health Centre and McGill University.