Research Participation Opportunities

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Parent Training Study

The purpose of the current study is to interview parents of children with autism to learn about their experiences with parent training related to ABA strategies. This information would be used to develop an assessment tool for clinicians that supports collaboration with parents during the development of the parent training plan or that helps identify variables that may contribute to dissatisfaction and disengagement of parent training plans.

Participant Eligibility: Participants may include parents who have children with autism across any age and socio-economic status. Inclusion criteria for this study includes: 1) having a child who is receiving ABA treatment or transitioned from services in the past six months, 2) parents who participate in parent training sessions or previously participated in parent training sessions within the past six months and 3) who speak English fluently. As there are no resources for language interpretation, parents who do not speak English will be excluded from the study.

Participation involves answering open-ended questions in an interview format that ranges from 1-2 hours in length; currently no compensation is provided.

Contact Nancy Marchese if you're interested in participating: nmarc233@mail.endicott.edu or 416-901-8478

Recruitment start-end date: Now until June 30, 2020

This study is being hosted by Endicott College.

Autism and Bullying in Childhood Online Study

This research is hosted by the University of York in the U.K  

We are looking to recruit individuals who have a diagnosis of Autism in an online study looking at their experiences of bullying in childhood.  You will be eligible to take part if you are:

1.   over the age of 18 

2.   have identified yourself as having a diagnosis of Autism

3.   have a good command of the English language

4.   have no significant visual problems that will prevent you using a screen

The study can be accessed through the following link on a smart phone or computer. It should take between 30 and 45 minutes to complete and looks at your experiences and perception of bullying in childhood. 

https://york.qualtrics.com/jfe/form/SV_6tHL22nCU0gC8Nn

Please note that if you choose to take part, you may withdraw at any time during the process of completing the questionnaire.  No personally identifying information will be collected and all data therefore will be fully anonymous.  Your answers will be treated with the strictest confidence.  

Thank you for taking part.  

Your contribution is greatly appreciated.

If you have any queries about the study, please contact 

Dr Miles Rogish   (miles.rogish@york.ac.ukor
Dr Melanie Forster  (melanie.forster@york.ac.uk).

A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD

Have you/ your child been diagnosed with an autism spectrum disorder? Do you/ your child have social difficulties and/or repetitive behaviours?    Are you/ your child located near Toronto, Kingston, Hamilton or London, Ontario? You/ your child may be eligible to participate in a clinical trial of a medication called arbaclofen!

Who can participate: Children and teens between 5-17 years of age with a diagnosis of an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)

What's involved: The trial will last a total of 18 weeks (4.5 months) and involves taking either arbaclofen or a placebo, as a meltaway tablet, 1-3 times per day for 18 weeks. You and your child will first be asked to come in for a screening session; through talking with you/ your child and completing some assessments, we will determine if you/ your child meets eligibility criteria.

Visits will occur at participating sites: Holland Bloorview, Queen’s University, McMaster University or Lawson Research Institute.  Visits will take place every 2-4 weeks while you/ your child are taking the drug or placebo. This study also has an optional continuation part, which means that all participants will be able to take arbaclofen at the end of the 18 weeks. The same tests and procedures will be followed that were followed during the main study.

The ultimate goal of this study is to find out if arbaclofen is helpful in improving social function. 

Participants will receive a small token of appreciation in the form of a $20.00 gift card to thank them for their time

Deadline: The study began in January 2019 and recruit for up to 18 months.

Interested in participating? If you / your child are interested in participating in this study or have additional questions, please contact the site closest to you and the study staff will get back to you shortly. 

Toronto: Leanne Ristic at 416-425-6220 ext. 6321 or lristic@hollandbloorview.ca

Kingston: Jennifer Lalonde at  613-548-4417 ext. 1111 or jennifer.lalonde@queensu.ca

Hamilton: Alessia Greco at  905-525-9140 ext. 21261 or algreco@mcmaster.ca

London: Ahsan Ahmad at 519-685-8500 ext. 74906 or ahsan.ahmad@lhsc.on.ca