Research Participation Opportunities

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Healthcare Access Survey - Autism and Official Language Minorities

Dr. Aparna Nadig's pop lab invites you to take part in an online survey on healthcare access for people on the autism spectrum!

Our Goal: To learn about possible barriers to accessing healthcare services experienced by people on the autism spectrum and their families

Who? Adults (18 or older) in Canada who:

  • self-identify as autistic and can complete a written survey
  • care for or have cared for, a family member on the spectrum (including non or minimally speaking children and individuals with all levels of language and intellectual ability

What's Involved? 

  • Online study: need to have a computer and internet access
  • Complete a survey that should take about 30-50 minutes
  • A $15 gift card will be offered for your participation

If you are interested in participating: please email poplab.scsd@mcgill.ca using the subject line: Healthcare Access Survey

The Queen’s Visual Cognition Laboratory - Investigating the role of camouflaging in Autism Spectrum Disorders

The Queen’s Visual Cognition Laboratory is seeking Autistic adults (e.g., Autism Spectrum Condition/ Disorder, Autism, Asperger’s Syndrome, Pervasive Developmental Disorder) for an online study on their lived experiences navigating social situations. This study will involve viewing videos and answering questions about the videos, your personal experience navigating social interactions, your mental health and some basic demographic information. Participants must be 18 years of age or older and be able to read and write in English. The study takes approximately 45 minutes to complete. To participate, click on this link https://mili2nd.co/i6zb. Prize draws (1 in 25 chance for a $25 gift card) are available.  

For more information about the study, please contact the Queen’s Visual Cognition Laboratory at qvcl.sub@gmail.com. Be sure to mention the FETTUCCINE study. All inquiries are completely confidential. 

The Chicago School of Professional Psychology - The Effect of a Parent Mediated Toilet Training Program on Children's Toileting Skills Delivered via Telehealth

Looking for Caregiver and Child Participants

Child must have a diagnosis of autism, between 2.5 – 8 years of age and repeat a minimum of 2 spoken words or actions Child must reside with the primary caregiver for the full duration of the 12 - week study

Time commitments for at least one caregiver:

  • A maximum of two, 2-hour telehealth training sessions which includes video recording of participants while practicing the steps with a doll (that you could keep), to then transfer the skills with your child
  • A minimum of 2-hours of support on the first day of training your child
  • Once a week, 20-minute telehealth follow-up consultations, for a maximum of 12 weeks 
  • Supporting your child daily as the primary caregiver, for a maximum of 12 weeks
  • Talking and forwarding data daily

Materials required:

  • Access and experience in using a computer/iPad with a built-in camera, email and internet speed of 25 Mbps

If interested, please contact Natalie Paquet Croteau, M.A., BCBA at 1-705-618-4448 or by email at: ncroteau@ego.thechicagoschool.edu

The Chicago School of Professional Psychology

Organizational Benefits of Neurodiversity

Investigators: Lorne Hartman & Braxton Hartman
Research question: Do employees with autism bring new perspectives to employers that enhance organizational performance?
Eligibility requirements:
- Are you on the spectrum?
- Do you work at a job more than 5 hours per week?
- Are you over the age of 18?
- Do you have a stable internet connection?

If you are interested in participating and meet these requirements, follow this link to the survey:  Qualtrics Survey | Qualtrics Experience Management 

The survey will take 20-30 minutes to complete.

If you have questions, contact us at: lhartman@schulich.yorku.ca

 

Open until March 31, 2022

Deakin Universtiy - Romantic Relationships Study

Researchers at Deakin University are interested in what helps and what damages romantic relationships among autistic individuals and among non-autistic individuals. We believe this may help inform a program to support autistic people to develop better romantic relationships.

If you are at least 18 years old and:

-You are autistic (you do not have to have current or previous relationship experience to take part); or

- You are currently in or previously had a relationship with an autistic individual,

We ask if you would participate in an online survey about your romantic and possibly sexual relationship experiences, as well as your personality traits.

This survey may take 30-40 minutes to complete.

For more information on this research, please contact Ying at ryew@deakin.edu.au

This study has received Deakin University ethics approval (reference number: 2020-344).

Enter the draw to win 1 of 20 Amazon gift cards valued at $20 (AUD) upon completion of this survey!

Feel free to share this with other people who may also be interested in participating!

University of Toronto - Women with Disabilities Seeking Care, Health and Health Care Justice

Are you a disabled woman in Ontario between 19-64 years of age?

Are you interested in discussing your health care experiences?

If you are, U of T would like to hear from you!

You are invited to participate in a 2-4 hour virtual interview where you will be asked about your experiences accessing health care.

This is for a PhD research study titled: Women with Disabilities Seeking Care, Health and Health Care Justice.

 

To find out more about this study, please contact:
Terri-Lynn Langdon, PhD (C)
University of Toronto, Ontario Institute for Studies in Education, Social Justice Education
Email: terrilynn.langdon@mail.utoronto.ca
Phone: 647-520-2558

 

For more information, please contact:
Dr. Tanya Titchkosky, Disability Studies
University of Toronto, Ontario Institute for Studies in Education, Social Justice Education
Email: tanya.titchkosky@utoronto.ca

McMaster University - Targeted Cognitive Intervention: Assessment and Plasticity in Autism Spectrum Disorder (ASD)

McMaster University along with Hamilton Health Sciences and McMaster Children's Hospital is recruiting children with Autism Spectrum Disorder (ASD) who are between the ages of 3-7 years old to take part in an intervention research study.

Background Information:
This study will test a new computer-based program called “A Computerized Cognitive Intervention Solution” (ACCIS), which aims to improve the way children with ASD think and solve problems. If successful, the program may provide long-term benefits to children with ASD.

Who Can Participate in the Study?
Any children with ASD between the ages of 3-7 years can take part in this study. Participation entails two or three 1-hour assessment sessions completed remotely and access to an iPad or iPhone.

If you are interested in participating in this study or would like to learn more about this opportunity, please contact  Dr. Diana Parvinchi at: dparvinchi@mcmaster.ca, or Dr. Geoffrey Hall at (905)525-9140, extension 23033.

Researchers:
Dr. Geoffrey Hall, PhD.
Dr. D. Parvinchi, Ph.D.

Dr. Caroline Roncadin, C.Psych.
Dr. T. Bennett, MD
Dr. Georgiades, PhD

Open until January 2022

University of Calgary - Study with Chinese Immigrants with Autism in Canada

The University of Calgary is conducting a study to learn about the first-hand experiences of Chinese immigrants who have been diagnosed with autism in Canada. The purpose is to better understand the perspectives of the immigrant community in Canada who have undergone a developmental disability diagnosis, as well as use the information to develop strategies and/or provide insight for professionals and clinicians who are considering diagnosing a Chinese individual with autism. This study is conducted entirely online.

To participate in this research project, you must:

•  Be aged 16 years or older, up to 35 years old.

•  Be an immigrant of Chinese descent who is now living in Canada.

•  Have autism, including Asperger syndrome, or are actively in the process of obtaining a formal diagnosis in Canada

•  Be verbally fluent and understand a sufficient level of English or Mandarin Chinese

•  Be able to provide informed consent.

Participation involves a short online demographic survey (in either English or Chinese), filling out online consent forms, and an online (Zoom) interview about your experiences of receiving an autism diagnosis. The interview should take about 1 to 1.5 hours of the participant’s time. All participants will receive a $25 gift card of their choice.

If you would like more information about the study or are interested in participating, please contact Cecilia (Cici/Qian Qian) Ye at qqye@ucalgary.ca.

 

Please see attached for more info - English Version - Chinese Version

Social Processes Initiative in Neurobiology of Autism-spectrum and Schizophrenia-spectrum Disorders (SPIN-ASD)

Who can participate?

Individuals aged 16-35 with an Autism Spectrum Disorder diagnosis, who have not been diagnosed with intellectual disability.

 

What is the study about?

We are interested in understanding more about how the brain works in ASD, and how brain structure and function relate to behavior. We hope this knowledge informs treatment development. Your participation would go a long way to helping us understand more about ASD and mental health.

 

What do I have to do and how much time would it take?

If you decide to participate, you would take part in screening and clinical assessments at CAMH. They will involve demographic questions, a urine sample, and some social thinking and decision making tests. This is an imaging study, which means you would also complete an MRI brain image scan. Completing all of the components of this study would take 12 hours over 3-4 days.

 

Would I be compensated for my time?

Participants will receive an honorarium in appreciation for their time. If you decide to withdraw before the study end, you would be paid for the study visits you completed.

 

Who do I contact if I have questions or I want to participate in the study?

The Study Investigator is Dr. Stephanie Ameis. If you have any questions about the study or would like to participate, please contact our Research Analyst:

Enea Koxhioni

Phone: 416-535-8501 ext. 39140

Email: enea.koxhioni@camh.ca

Holand Bloorview - Aging in Autism Spectrum Disorders: Changes in Brain Structure and Function

Are you an autistic adult /adult with Autism Spectrum Disorder ( ASD)? Consider participating in Holland-Bloorview's study

What is this study about?
This study will help develop a better understanding of autistic adults/ adults with ASD . It will explore aging and brain function amongst autistic adults/adults with ASD.

Who can participate?
We are looking for adults:
-40 years and older
-Have an ASD diagnosis
-With normal or corrected to normal vision and hearing

What’s involved?
-You will be asked to answer questionnaires, undergo cognitive assessments, and have brain scans
-Participation involves two sessions one initial session and another after 4 years
-You may also provide a blood sample for genetic analysis (optional)
- Each session will take approximately 2 days.

Participants will receive $100 per study session as reimbursement. You can also request the results of your testing.

Principal Investigator: Dr. Evdokia Anagnostou

To ask questions or sign up, please contact: Daman Rehal 416-425-6220 ex. 3740 or drehal @hollandbloorview.ca

CIHR AGING_Recruitment flyer V2
U of Guelph - Parental Self-Efficacy In Parents Of Children With Autism Spectrum Disorders

Primary caregivers of youth with autism aged 6-18 and who live in Ontario, Canada are invited to participate in a 30-minute online survey. Participants will be entered into a draw for 1 of 15 $20 gift cards.

The research project is being conducted under the direction of Rita Abdel-Baki and Dr. Kristel Thomassin at the University of Guelph.
 
What is this study about?
This study is about parental self-efficacy, or how well a parent feels able to meet their child’s needs. We hope to learn more about how parental self-efficacy in parents of children with autism spectrum disorders is related to parent (for example, parent stress, parent mental health, and the co-parenting relationships), child (for example, children’s symptom severity), and systemic factors (for example, what supports are available to parents).
 
Who is eligible to participate?
To be eligible to participate, you must be a primary caregiver of a child 6-18 years old with a diagnosis of an autism spectrum disorder, including autistic disorder, Asperger’s syndrome, or pervasive developmental disorder – not otherwise specified (PDD-NOS). You must live in Ontario, Canada, and be able to read, write, and speak in English.

 

If you have any questions or concerns about the research, please contact Rita Abdel-Baki, MSc, MA, at rabdelba@uoguelph.ca or Dr. Kristel Thomassin, Ph.D., C.Psych., at Kristel.Thomassin@uoguelph.ca.

 

PSE and ASD Flyer - Fathers and Caregivers

 

 

Memorial University - Executive Functioning and Math Ability - Ages 12-18

Memorial University is recruiting autistic adolescents to participate in a study investigating the impact which executive functioning abilities have on math performance. Participants must be within the 12- to 18-year age range, attending school, and have a diagnosis of autism. Individuals with a math-based learning disability (i.e., dyscalculia) are not eligible to participate. 

Testing will take place remotely and online via a computer, through a one-on-one session with the primary researcher via Zoom virtual communication. Participants will complete an electronic survey comprised of a number of cognitive tasks measuring general intellectual ability (i.e., Raven’s 2, see Raven et al., 2018), math performance, and executive functioning capacities. 

The survey will take approximately 50 minutes to complete. Parents will need to sign a written consent form and complete a demographic questionnaire before their child can participate.  Participants will be entered for a chance to win one of ten $50 gift cards.

The primary researcher is a graduate student (M.Sc. Experimental Psychology) of Memorial University of Newfoundland. The proposal for this research has been reviewed by the Interdisciplinary Committee on Ethics in Human Research and found to be in compliance with Memorial University’s ethics policy.

Please contact the primary supervisor, Nicole Eddy - neddy@mun.ca if you or your child are interested in participating in this study or would like more information.

Open until June 2022

Memorial University - Executive Functioning and Math Ability Poster
Walden University: Autism Interventions and Quality of Life in People with Autism

Walden University invites you  to take part in a research study about the relationship between the autism interventions you have used and your quality of life and mental health. 

 

This study seeks volunteers who are:

  • Adults with an autism spectrum disorder (ASD) diagnosis 18 years of age and older without an intellectual disability (ID); OR
  • Parents/caregivers of adults with ASD 18 years of age and older without intellectual disability (ID) who are willing to complete the study survey on behalf of their child.

 

NOTE: Either the individual with autism OR their parent may complete the survey, not both. However, should the autistic individual need support to complete the survey, the parent/caregiver may provide help as needed.

 

Study Purpose:
The purpose of this study is to determine the relationship between the interventions used by people with autism aged 18 years and older without ID and their quality of life and mental health.

 

Procedures:
This study will involve you completing the following steps:

  • Completing an anonymous online survey which will take about 20-25 minutes to complete
  • As token of appreciation, a $10 gift card will be provided to all participants who complete the study survey

 

Contacts and Questions:
You can ask questions of the researcher by calling at 647-339-3937 or emailing at taline.movsessian@waldenu.edu. If you want to talk privately about your rights as a participant or any negative parts of the study, you can call Walden University’s Research Participant Advocate at 612-312-1210.

Walden University’s approval number for this study is 11-05-21-0981565.

 

Open until November 4, 2022.

Western University: Everyday Experiences and Communication

We are interested in what people know about common events and how people communicate. We are looking for autistic and non-autistic adults and children to participate in an online study.

Researchers: Kara Hannah, Dr. Ken McRae, and Dr. Ryan Stevenson

Who can participate?

  • Adults (18 and older) who are autistic or non-autistic
  • Children (aged 9-17) who are autistic or non-autistic, and their parents/guardians
  • Participants must be English speakers.

 

What is involved?

The study has three parts:

  • Filling out personality/behaviour questionnaires. (For children under 18, this would be completed by a parent or guardian.)
  • Completing a task about ordering the steps people do during common events (like going to the movies).
  • Having a Zoom call for language and knowledge tasks with the researcher. Participants will answer questions about words, sentences, and pictures.

 

A device with a reliable internet connection would be needed for the study. In total, the study may take up to 3 hours.

 

Will I be compensated?

In total, you would be given $30 CAD for participating in the study.
 

Who do I contact?
If you (or your child) want to participate or have questions, please email Kara Hannah, McRae Cognitive Science Lab, and the Sensory Perception Research Lab at Western University at khannah6@uwo.ca.

BC Children’s Hospital - impACT for DCD

Dr. Jill Zwicker, occupational therapist, researcher, and expert in Developmental Coordination Disorder (DCD) at BC Children’s Hospital and her team are currently recruiting parents of children with DCD to participate in an on-line survey. 

They are conducting research on the physical, social, emotional and financial impact of DCD on the child and family. The impACT for DCD questionnaire will be used to gather this information to inform government about the service needs of children with DCD and their families. If you meet the criteria for participation, please click on the link for further details and to complete the questionnaire. The criteria to participate in this research is as follows:

1.     Primary residence of parent(s) and child(ren) is in Canada

2.     Child(ren) must be under the age of 18 years with motor coordination challenges 

3.     These motor coordination challenges are not because of biological, genetic and/or developmental delays (e.g., cerebral palsy, Down’s syndrome, chromosomal abnormality, etc.)

4.     Child(ren) may have a diagnosis of DCD, but a formal diagnosis is not required to participate in the study. Parents of children suspected to have DCD may also participate. 

5.     Child(ren) may have other co-occurring conditions that can include autism, ADHD, learning disabilities and/or speech language deficits. 

6.     Parents can be biological, adoptive or guardian/caregiver

7.     Parents need to be able to speak and read English or French

 

Thank you in advance for your participation in this research study. Please feel free to forward this link to other participants that also meet the listed criteria. 

 

For more information in French - click here - https://bit.ly/impactfordcdfrench