Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.)

Please see the research participation opportunities below. 

Personal safety in the Community: comparing the victimisation experiences of autistic and non-autistic adults.

This study aims to investigate how often, and in what contexts, Autistic adults experience abuse and victimisation compared to non-Autistic adults. We also want to identify what might put people at risk, or protect them from these experiences. You are invited to take part in this study if you

  • are aged 18 years or over
  • have not been diagnosed with an intellectual disability or severe mental illness (bipolar disorder, schizophrenia or other delusional disorder).

You don’t need to have experienced abuse or victimisation to participate in this study.

Vicki Gibbs and Professor Liz Pellicano of Macquarie University, Australia are conducting the study. The project also receives guidance from an Autistic Advisory groupIf you decide to take part, we will ask you to complete a survey about your background, any experiences of abuse or victimisation you have experienced since the age of 15 and your social and emotional functioning. The survey will take about 20 minutes to complete. Participants will receive a $15 e-gift voucher.

To participate in the study email Vicki Gibbs vicki.gibbs@hdr.mq.edu.au for the survey link.

Understanding Interactions Between Young People with Autism Spectrum Disorder and the Animals in their Homes

What is this study about?

We want to learn from youth with disabilities about their views on the animals in their lives. How do youth engage with their pets/service animals and what kind of relationships exist?

Who can participate?

· Youth between 12-18 years old and a parent of the youth

· Youth who identify as on the autism spectrum

· Live in Ontario

· Live with an animal (species does not matter)

· Able to participate in an English language interview

What’s involved?

Participate in one interview session (approximately 1 hour), virtually using Zoom

Potential Benefits?

This study will help us understand youths’ perspectives on and experiences with the animals in their lives.

Participants will receive a gift card and school volunteer hours for participation in the study.

TO ASK QUESTIONS OR TO SIGN UP, CONTACT:

Pia Vollmers, MSc Student

Phone: 416-946-8574

Email: haistudy@utoronto.ca

Date Posted: 10/03/2021 REB#: 3998

 

Principal Investigator: Pia Vollmers, University of Toronto

This study is being conducted for a Master’s research project under the supervision of Dr. Yani Hamdani and Dr. Barbara Gibson at the Rehabilitation Sciences Institute, University of Toronto.

Social Competency and Autism Spectrum Disorder

We are looking for volunteers to take part in a study that aims to understand social competence and how it relates to individuals with ASD. Individuals who are older than 16 years old are invited to participate in this study.

If you are interested and agree to participate you would be asked to: fill out a series of questionnaires and watch brief video clips and provide ratings on these video clips.

Your participation can be completed online and will take about 2 hours to complete.

In appreciation for your time, you will receive $20

For more information about this study, or to volunteer for this study, please contact: SPRlab@uwo.ca

Individuals with Autism and Intellectual Disabilities Transitioning to Adulthood

Researchers from University of Western Ontario are recruiting youths that have recently left high school with a dual diagnosis of Autism and Mild- Moderate Intellectual Disability. Help us understand the needs of people with Autism and Mild- Moderate Intellectual Disability as they prepare to leave high school.

Study participation involves: Two 30 minute – 1-hour interviews: 1 with youth and 1 with caregiver.

Eligibility:

  • Participants who have been out of high school in the past two years
  • Speaks English
  • Diagnosis of Autism Spectrum Disorder and Mid-Moderate Intellectual Disability

CONTACT for more information

Richa Mehta,

Health and Rehabilitation Sciences, University of Western Ontario

Rmehta9@uwo.ca

Cognitive Rehabilitation (Mega Team) and its effects on emotional and behavioural regulation in ADHD, ASD, and CHD

The Department of Psychiatry at The Hospital for Sick Children (SickKids) is undertaking an exciting new research study where we will be looking to see if a video game can help improve behavioural control and working memory in kids. 

Who Can Participate?: You can help us out with our study if you are/or have a child with a diagnosis of either Attention Deficit Hyperactive Disorder (ADHD), Autism Spectrum Disorder (ASD), and/or a Congenital Heart Disease/Defect (CHD), are between 6-12 years of age, willing to come to SickKids for 3 study visits, and are willing to play the video game at home for 5 weeks. Compensation will be provided. 

Interested in Participating?: If you are interested in participating in this study and/or would like more information, please contact Taha Arshad.

E-mail: mega.team@sickkids.ca

Phone: 416-813-8210 

Promoting the Social Inclusion of Students with Autism Spectrum Disorder (ASD) Via Mobile Technologies

I have been studying how mobile technologies like iPads can promote social inclusion of students with autism spectrum disorder (ASD) by meeting their communication, social, language, and educational needs. In this study, I am focusing on understanding the experiences of children, educators, parents/legal guardians, and other school-based staff members (such as administrators, etc.) when students with ASD are using mobile technologies for social inclusion, and how these experiences support the social inclusion of students with ASD.

Who can Participate? Elementary school students with Autism Spectrum Disorder (ASD), peers of students with ASD who have knowledge about mobile technologies and ASD, parents/legal guardians with students with ASD, educators who are or have worked with students with ASD, and other school-based staff members.

Participant Eligibility: Interested participants should meet ANY ONE of the following criteria:

1) Elementary students with ASD who have used mobile technologies for at least ONE year

2) Students who are friends and peers of elementary students with ASD. Please note, you will be asked questions about your peers who have ASD and who have used mobile technologies

3) The educators (teachers and educational assistants) and school staff members who would qualify to participate in this research study should have some familiarity, experience, and/or knowledge in using mobile technologies to support current elementary students or past elementary students with ASD

4) Parents / legal guardians who would qualify to participate in this research study are parents /legal guardians of elementary students with ASD

What is Involved? Eligible Participants will be asked to participate in a 5–10 minutes Online survey and 30-35 minutes Online or phone interview. The total time commitment is 35 to 45 minutes.

As a thank you for your participation, you will be offered a $25 Amazon gift card or $25 cash.

To participate, please click the following link: https://www.ucalgary.ca/research/participate/study/14695/promoting-social-inclusion-students-autism-spectrum-disorder-mobile-technologies

More Information? If you would like to find out more about the study, please contact Rahim Pira at rnpira@ucalgary.ca

This study has received ethics clearance from the Research Ethics Office at the University of Calgary (REB# 20-0061). The study is also hosted by the University of Calgary, Werklund School of Education.

Cultural Sensitivity in Behaviour Analysis Services in Ontario

The purpose of this study is to investigate the cultural and linguistic diversity of applied behaviour analysis (ABA) service providers and recipients in Ontario. Should you choose to participate, you will be asked to anonymously sign a consent form and complete an online questionnaire that will take approximately 10 minutes to complete. 

If you are 18 or older, an ABA service recipient or the caregiver of someone who receives ABA services, you may be eligible for the survey. If you choose to participate, you will be asked about demographic information including your age, household income, education, ethnicity, language, and the geographic area in which you live and receive ABA services. You will also be asked about your perception of ABA providers’ skills and experience working with individuals from diverse backgrounds.

If you are interested in participating in this study, please follow the link below; you will be directed to a consent form, followed by the questionnaire, if you choose to participate. Your responses will remain anonymous, and you will be free to withdraw your consent at any time while completing the survey, however once your survey has been submitted, it cannot be withdrawn due to the data being deidentified. Participants who wish to submit their email address have a chance to win a $100 Amazon gift card. 

SURVEY LINK: https://brock.ca1.qualtrics.com/jfe/form/SV_bxvFtVKF6PzZYBn

If you have any questions about your rights as a research participant, please contact the Brock University Research Ethics Officer (905-688-5550 ext. 2025, reb@brocku.ca). If you have any questions about this study, please feel free to contact Paige O’Neill at po17nk@brocku.ca or Julie Koudys at jkoudys@brocku.ca

The Effects of a Brief Mindfulness Mobile Application on Parenting and Noncompliance of Children with Autism

This research is hosted by the Brock University.

The study is exploring the effectiveness of a mindfulness app (Headspace®) on the parenting behaviours and parent-child interactions of parents of children with autism.

Who can participate:

· Parents of a child with autism/ASD between the ages of 3 and 11 years old, who demonstrate noncompliance.

· Parents who are interested in learning about mindfulness and applying it to their parenting

What is involved: Before starting the study, you and your son/daughter will meet virtually with the Student Principal Investigator (Jean Phan) to determine whether the study is a good fit for you and your child. As part of this study, you will complete a brief online Headspace® training session, engage daily with Headspace®, and complete regular questionnaires and video-recorded interactions between you and your child. All research sessions are virtual

As a thank you for your participation, you will be provided with access to Headspace® for a year, following the end of the study.

Recruitment Deadline: January 2021 – March 2021

Interested in participating? If you are interested in participating or would like to find out more about the study, please contact Jean Phan at jp17ka@brocku.ca

This study has received ethics clearance from Brock University (File #20-009 - BURNHAM RIOSA

The Impact of Raising a Child with Autism/ASD on the Co-Parenting Relationship

This research is hosted by the University of Guelph 

The study is exploring the impact of raising a child with Autism Spectrum Disorder (ASD) on the co-parenting relationship and/or romantic relationship, when relevant. The survey questions will explore your relationship and parenting satisfaction with your co-parenting partner 

Who can participate: Parents of children with autism/ASD, who share the caregiving responsibility, and live in Ontario. 

What is involved: You will be asked to complete an online survey. No personally identifying information will be collected and all data will be fully anonymous. 

As a thank you for your participation, you will have the opportunity to enter an incentive prize draw to win a $25 Amazon Canada gift card. 

Deadline: The study began December 2020 and will close April 2021. 

Interested in participating? If you are interested in participating, the study can be accessed through the following link. It should take approximately 25-minutes to complete. https://uoguelph.eu.qualtrics.com/jfe/form/SV_ekSOX9wx1drHJIx 

 

This study has received ethics clearance from the Research Ethics Office at the University of Guelph (REB# 20-09-004) 

If you have any questions or concerns please contact the Principal Investigator, John Beaton at beaton@uoguelph.ca 

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

The goal of this study is to test two versions (group coaching & self-managed) of an online program designed for parents of children with neurodevelopmental disabilities who are dealing with behaviours that negatively impact the activities of daily life. Developed with parents of neurodiverse children, the program consists of 11 skill-based sessions with demonstration videos, audio clips, exercises, a resource webpage and a Parent-to-Parent online group.

Who can participate: Primary caregivers of children between 3-14 years old who are diagnosed with Autism Spectrum Disorder and would like help managing behaviours that are having a negative impact on the activities of daily life.

Visit www.crfh.ca/neuro for more details.

You may complete up to 2 hours per week of the online program and group coaching for 11 weeks. Participants will also complete online questionnaires and a telephone interview 3 times during the 10 month study. A $50 honorarium is provided for completing each of the questionnaires (up to $150).

To apply, go to: https://mystudies.ca/studies/neuro

Recruitment will continue until June 2021. If you have any questions, please email sf.neuro.study@iwk.nshealth.ca

This research is hosted at the IWK Health Centre and has been approved by ethics boards at the IWK Health Centre and McGill University.

Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

This research is hosted by the ASD Studies Laboratory at Queen’s University.

Who can participate? In the online study Investigating Depressive Symptomatology in Adolescents with ASD and ADHD we are investigating the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. We are looking for adolescents both with and without depression and with and without ASD or ADHD between the ages of 12 and 18. We will also have the adolescent’s caregiver participate in the study. Please note, if your child is non-verbal we would still love to have you participate in the study. We will just skip their portion of the questionnaire.

What is involved? Adolescents will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. We will also have the caregivers fill out a questionnaire about how they believe their child has been feeling over the past two weeks. This should take approximately an hour. Due to COVID-19 restrictions, the study will be taking place over a video conferencing program called Zoom.

For participation, the participants and their caregivers will each be provided a $10 Amazon E-gift card.

Interested in participating? If you’re interested in participating please reach out the ASD Studies Laboratory by email or by phone.

Email: Asd@queensu.ca

Phone: 613-533-2894

Deadline: We began recruiting participants in June 2020 and will continue recruiting participants until March 2021.

If you have any questions or concerns, you may contact the Principal Investigator, Lindsey Wilson at asd@queensu.ca

A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD

Have you/ your child been diagnosed with an autism spectrum disorder? Do you/ your child have social difficulties and/or repetitive behaviours?    Are you/ your child located near Toronto, Kingston, Hamilton or London, Ontario? You/ your child may be eligible to participate in a clinical trial of a medication called arbaclofen!

Who can participate: Children and teens between 5-17 years of age with a diagnosis of an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)

What's involved: The trial will last a total of 18 weeks (4.5 months) and involves taking either arbaclofen or a placebo, as a meltaway tablet, 1-3 times per day for 18 weeks. You and your child will first be asked to come in for a screening session; through talking with you/ your child and completing some assessments, we will determine if you/ your child meets eligibility criteria.

Visits will occur at participating sites: Holland Bloorview, Queen’s University, McMaster University or Lawson Research Institute.  Visits will take place every 2-4 weeks while you/ your child are taking the drug or placebo. This study also has an optional continuation part, which means that all participants will be able to take arbaclofen at the end of the 18 weeks. The same tests and procedures will be followed that were followed during the main study.

The ultimate goal of this study is to find out if arbaclofen is helpful in improving social function. 

Participants will receive a small token of appreciation in the form of a $20.00 gift card to thank them for their time

Deadline: The study began in January 2019 and recruit until May 2021.

Interested in participating? If you / your child are interested in participating in this study or have additional questions, please contact the site closest to you and the study staff will get back to you shortly. 

Toronto: Leanne Ristic at 416-425-6220 ext. 6321 or lristic@hollandbloorview.ca

Kingston: Jennifer Lalonde at  613-548-4417 ext. 1111 or jennifer.lalonde@queensu.ca

Hamilton: Alessia Greco at  905-525-9140 ext. 21261 or algreco@mcmaster.ca

London: Ahsan Ahmad at 519-685-8500 ext. 74906 or ahsan.ahmad@lhsc.on.ca