Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.)

Please see the research participation opportunities below. 

Effect of COVID-19 on the cardiovascular health of children with ASD

The Institute of Technology Carlow, Ireland is conducting a survey to find out about the cardiovascular health (heart health) of school going children with Autism Spectrum Disorder and the effect that COVID-19 related restrictions has had on this aspect of their health. The inclusion criteria for this survey you must be a parent of a child with ASD of school going age.

The questionnaire is completely voluntary (there is no compensation) if you decide to take part, you will fill out a survey that will take 15 minutes to complete. There will be an option to leave your contact details to take part in further studies. By taking part you will be helping the research team understand some of the risk factors for cardiovascular health in this community and how COVID-19 related restrictions have impacted them. Your participation would be greatly appreciated.

The questionnaire has been approved by the Ethics Committee at I.T Carlow, Ireland and it is available for completion on the college's survey monkey account. The start date was the 15th of September closing date for the survey is the 15th of December

To take part please go to: https://www.surveymonkey.com/r/9Z3VV59

Contact information

If you have any further question, please contact the lead researcher

Katie White

katie.white@itcarlow.ie

 

Research Opportunity for Canadian Families of Children with Autism Spectrum Disorder (ASD)

Researchers at the University of Manitoba are looking for families of children with ASD who are interested in participating in a new and exciting study! We are conducting a research study to collect information about Canadian families’ experiences obtaining a diagnosis of ASD for their child.  We need your help to gain richer insights into families’ experiences as they navigate the diagnostic process. In particular, we are interested in hearing from families whose diagnosis was delayed (i.e., a diagnosis at the age of 5 or older). To accomplish this, we invite you to participate in a brief survey regarding your experiences going through the diagnostic process. 

Who is eligible?

Parents of children (ages 5-15) who were diagnosed with ASD at the age of 5 or older are eligible to participate.

As a thank you for participation, you will have the opportunity to enter a draw for 1 of 3 $100 Amazon eGift Cards!

If you are interested in participating in this research project, know somebody who might be interested, or would like to learn more, please contact Amber Yaholkoski by email: yaholkoa@myumanitoba.ca

This research has been approved by the Psychology/Sociology Research Ethics Board.

 

Mental Health and Parent-Child Relationships Among Parents of Transitional Age Youth with Autism

This research is hosted by the University of Guelph

This study aims to deepen understanding of the lived experience of parenting a transitional age youth (16-24) with ASD, particularly focusing on parental mental health and wellbeing, parent-child relationships, and co-parenting relationships.

Who can participate: Parents or primary caregivers of a transitional age youth (16-24) with ASD that have shared caregiving responsibilities and live in Ontario.

What is involved: You will be asked to complete an online survey about your experience(s) that should take approximately 45 minutes to complete. You will be asked at the end of the survey if you would like to be considered for a follow up (virtual) interview. Please note that agreeing to be considered for the interview does not mean that you have to participant, nor does it guarantee that you will be selected. Participation in this study will not impact any services that you may be receiving.

As a thank you for your participation in the survey, you will have the option of entering a draw for 1 of 5 e-gift cards worth $25 to a Canadian store of your choice. Participants who take part in the follow up interviews will receive an additional $25 honorarium.

We encourage participants from all regions of Ontario to participate and both parents/caregivers within each family!

Deadline: Recruitment for the survey will begin October 2020 and will close January 2021.

Interested in participating? If you are interested in participating, the study can be accessed through the following link: https://uoguelph.eu.qualtrics.com/jfe/form/SV_0dM7mQ2KttilpGZ

This study has been reviewed and received ethics clearance through the Research Ethics Office at the University of Guelph (REB# 20-06-018).

If you have any questions or concerns, you may contact Samantha O’Leary at solear01@uoguelph.ca

Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

This research is hosted by the ASD Studies Laboratory at Queen’s University.

Who can participate? In the online study Investigating Depressive Symptomatology in Adolescents with ASD and ADHD we are investigating the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. We are looking for adolescents both with and without depression and with and without ASD or ADHD between the ages of 12 and 18. We will also have the adolescent’s caregiver participate in the study.

What is involved? Adolescents will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. We will also have the caregivers fill out a questionnaire about how they believe their child has been feeling over the past two weeks. This should take approximately an hour. Due to COVID-19 restrictions, the study will be taking place over a video conferencing program called Zoom.

For participation, the participants and their caregivers will each be provided a $10 Amazon E-gift card.

Interested in participating? If you’re interested in participating please reach out the ASD Studies Laboratory by email or by phone.

Email: Asd@queensu.ca

Phone: 613-533-2894

Deadline: We began recruiting participants in June 2020 and will continue recruiting participants until November 2020.

If you have any questions or concerns, you may contact the Principal Investigator, Lindsey Wilson at lindsey.wilson@queensu.ca

Understanding how parents of children with Autism Spectrum Disorder perceive the role of formal and informal support resources

This research is hosted by the University of Guelph.

We are looking to recruit parents of children with ASD to participate in a study looking at their experiences in accessing support resources and services. We want to examine how parents of children with ASD view the effectiveness, availability, and accessibility of support resources in Ontario and where they seek out this support.

Who can participate: Parents of a child between 6-17 years of age with a diagnosis of an Autism Spectrum Disorder, who live in Ontario, and see their child on a regular basis.

What is involved: You will be asked to complete one online survey. Please note that if you choose to take part, you may withdraw at any time. No personally identifying information will be collected and all data therefore will be fully anonymous.

As a thank you for your participation, each participant will be given the opportunity to enter into an incentive prize draw to win $25.

Deadline: The study began in September 2020 and will recruit until December 2020.

Interested in participating? If you are interested in participating, the study can be accessed through the following link on a smartphone or computer. It should take approximately 30 minutes to complete. https://uoguelph.eu.qualtrics.com/jfe/form/SV_73eJOItCZ1O7iHX

If you have any questions or concerns, you may contact the Principal Investigator, Tricia van Rhijn at tricia.vanrhijn@uoguelph.ca

Workplace disability disclosure decisions among youth and young adults with Autism Spectrum Disorder

Are you a youth or young adult with autism? Consider participating in a study about youths’ experiences and needs related to making disability disclosure decisions at work.

In this study, being conducted at Holland Bloorview Kids Rehabilitation Hospital, we are looking to explore the needs of youth with autism related to making disclosure decisions about their autism diagnosis at work. We want to know what youth need to help make disclosure decisions in the workplace.

Who can participate: We are looking for youth with autism, aged 15-24, who are able to communicate in English and are currently employed or have work experience.

What’s involved: Participants will be asked to take part in 1 virtual focus group session using Zoom (around 2 hours) with other youth with autism. Participants will receive a gift card and can also receive volunteer hours as a token of appreciation to thank them for their time.

Deadline: December 2020

Interested in participating?: If you are interested in participating in this study or have additional questions, please contact Vanessa Tomas at vtomas@hollandbloorview.ca (phone: 416-425-6220 ext. 3091) with your interest, and she will get back to your shortly.  Contacting us does not obligate you to participate in the study.

A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD

Have you/ your child been diagnosed with an autism spectrum disorder? Do you/ your child have social difficulties and/or repetitive behaviours?    Are you/ your child located near Toronto, Kingston, Hamilton or London, Ontario? You/ your child may be eligible to participate in a clinical trial of a medication called arbaclofen!

Who can participate: Children and teens between 5-17 years of age with a diagnosis of an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)

What's involved: The trial will last a total of 18 weeks (4.5 months) and involves taking either arbaclofen or a placebo, as a meltaway tablet, 1-3 times per day for 18 weeks. You and your child will first be asked to come in for a screening session; through talking with you/ your child and completing some assessments, we will determine if you/ your child meets eligibility criteria.

Visits will occur at participating sites: Holland Bloorview, Queen’s University, McMaster University or Lawson Research Institute.  Visits will take place every 2-4 weeks while you/ your child are taking the drug or placebo. This study also has an optional continuation part, which means that all participants will be able to take arbaclofen at the end of the 18 weeks. The same tests and procedures will be followed that were followed during the main study.

The ultimate goal of this study is to find out if arbaclofen is helpful in improving social function. 

Participants will receive a small token of appreciation in the form of a $20.00 gift card to thank them for their time

Deadline: The study began in January 2019 and recruit until May 2021.

Interested in participating? If you / your child are interested in participating in this study or have additional questions, please contact the site closest to you and the study staff will get back to you shortly. 

Toronto: Leanne Ristic at 416-425-6220 ext. 6321 or lristic@hollandbloorview.ca

Kingston: Jennifer Lalonde at  613-548-4417 ext. 1111 or jennifer.lalonde@queensu.ca

Hamilton: Alessia Greco at  905-525-9140 ext. 21261 or algreco@mcmaster.ca

London: Ahsan Ahmad at 519-685-8500 ext. 74906 or ahsan.ahmad@lhsc.on.ca 

 
Autism and Bullying in Childhood Online Study

This research is hosted by the University of York in the U.K  

We are looking to recruit individuals who have a diagnosis of Autism in an online study looking at their experiences of bullying in childhood.  You will be eligible to take part if you are:

1.   over the age of 18 

2.   have identified yourself as having a diagnosis of Autism

3.   have a good command of the English language

4.   have no significant visual problems that will prevent you using a screen

The study can be accessed through the following link on a smart phone or computer. It should take between 30 and 45 minutes to complete and looks at your experiences and perception of bullying in childhood. 

https://york.qualtrics.com/jfe/form/SV_6tHL22nCU0gC8Nn

Please note that if you choose to take part, you may withdraw at any time during the process of completing the questionnaire.  No personally identifying information will be collected and all data therefore will be fully anonymous.  Your answers will be treated with the strictest confidence.  

Thank you for taking part.  

Your contribution is greatly appreciated.

If you have any queries about the study, please contact 

Dr Miles Rogish   (miles.rogish@york.ac.ukor
Dr Melanie Forster  (melanie.forster@york.ac.uk).