Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.)

Please see the research participation opportunities below. 

Cultural Sensitivity in Behaviour Analysis Services in Ontario

The purpose of this study is to investigate the cultural and linguistic diversity of applied behaviour analysis (ABA) service providers and recipients in Ontario. Should you choose to participate, you will be asked to anonymously sign a consent form and complete an online questionnaire that will take approximately 10 minutes to complete. 

If you are 18 or older, an ABA service recipient or the caregiver of someone who receives ABA services, you may be eligible for the survey. If you choose to participate, you will be asked about demographic information including your age, household income, education, ethnicity, language, and the geographic area in which you live and receive ABA services. You will also be asked about your perception of ABA providers’ skills and experience working with individuals from diverse backgrounds.

If you are interested in participating in this study, please follow the link below; you will be directed to a consent form, followed by the questionnaire, if you choose to participate. Your responses will remain anonymous, and you will be free to withdraw your consent at any time while completing the survey, however once your survey has been submitted, it cannot be withdrawn due to the data being deidentified. Participants who wish to submit their email address have a chance to win a $100 Amazon gift card. 

SURVEY LINK: https://brock.ca1.qualtrics.com/jfe/form/SV_bxvFtVKF6PzZYBn

If you have any questions about your rights as a research participant, please contact the Brock University Research Ethics Officer (905-688-5550 ext. 2025, reb@brocku.ca). If you have any questions about this study, please feel free to contact Paige O’Neill at po17nk@brocku.ca or Julie Koudys at jkoudys@brocku.ca

The Effects of a Brief Mindfulness Mobile Application on Parenting and Noncompliance of Children with Autism

This research is hosted by the Brock University.

The study is exploring the effectiveness of a mindfulness app (Headspace®) on the parenting behaviours and parent-child interactions of parents of children with autism.

Who can participate:

· Parents of a child with autism/ASD between the ages of 3 and 11 years old, who demonstrate noncompliance.

· Parents who are interested in learning about mindfulness and applying it to their parenting

What is involved: Before starting the study, you and your son/daughter will meet virtually with the Student Principal Investigator (Jean Phan) to determine whether the study is a good fit for you and your child. As part of this study, you will complete a brief online Headspace® training session, engage daily with Headspace®, and complete regular questionnaires and video-recorded interactions between you and your child. All research sessions are virtual

As a thank you for your participation, you will be provided with access to Headspace® for a year, following the end of the study.

Recruitment Deadline: January 2021 – March 2021

Interested in participating? If you are interested in participating or would like to find out more about the study, please contact Jean Phan at jp17ka@brocku.ca

This study has received ethics clearance from Brock University (File #20-009 - BURNHAM RIOSA

The Impact of Raising a Child with Autism/ASD on the Co-Parenting Relationship

This research is hosted by the University of Guelph 

The study is exploring the impact of raising a child with Autism Spectrum Disorder (ASD) on the co-parenting relationship and/or romantic relationship, when relevant. The survey questions will explore your relationship and parenting satisfaction with your co-parenting partner 

Who can participate: Parents of children with autism/ASD, who share the caregiving responsibility, and live in Ontario. 

What is involved: You will be asked to complete an online survey. No personally identifying information will be collected and all data will be fully anonymous. 

As a thank you for your participation, you will have the opportunity to enter an incentive prize draw to win a $25 Amazon Canada gift card. 

Deadline: The study began December 2020 and will close April 2021. 

Interested in participating? If you are interested in participating, the study can be accessed through the following link. It should take approximately 25-minutes to complete. https://uoguelph.eu.qualtrics.com/jfe/form/SV_ekSOX9wx1drHJIx 

 

This study has received ethics clearance from the Research Ethics Office at the University of Guelph (REB# 20-09-004) 

If you have any questions or concerns please contact the Principal Investigator, John Beaton at beaton@uoguelph.ca 

READYorNot Brain-Based Disabilities Trial

We’re looking for young people to help us with our study! 

We need youth in Ontario aged 15-17 with Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida to help us test a new app about health care transitions. 

Eligible participants will earn up to $40 in gift cards ($20 after each online study visit). 

To join the study, contact: galuppi@mcmaster.ca

Who can participate? 

You may be eligible for this study if: You are 15, 16 or 17 years old You have Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida; and You are thinking about being more independent in taking charge of your own care, such as asking or answering questions when you are with a doctor or nurse. 

Interested to hear more? 

Contact: Barb Galuppi or Nadilein Mahlberg Telephone: 905-525-9140, extension 27852 galuppi@mcmaster.ca

Learn more about this study at: https://www.child-bright.ca/readyornot

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

The goal of this study is to test two versions (group coaching & self-managed) of an online program designed for parents of children with neurodevelopmental disabilities who are dealing with behaviours that negatively impact the activities of daily life. Developed with parents of neurodiverse children, the program consists of 11 skill-based sessions with demonstration videos, audio clips, exercises, a resource webpage and a Parent-to-Parent online group.

Who can participate: Primary caregivers of children between 3-14 years old who are diagnosed with Autism Spectrum Disorder and would like help managing behaviours that are having a negative impact on the activities of daily life.

Visit www.crfh.ca/neuro for more details.

You may complete up to 2 hours per week of the online program and group coaching for 11 weeks. Participants will also complete online questionnaires and a telephone interview 3 times during the 10 month study. A $50 honorarium is provided for completing each of the questionnaires (up to $150).

To apply, go to: https://mystudies.ca/studies/neuro

Recruitment will continue until June 2021. If you have any questions, please email sf.neuro.study@iwk.nshealth.ca

This research is hosted at the IWK Health Centre and has been approved by ethics boards at the IWK Health Centre and McGill University.

Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

This research is hosted by the ASD Studies Laboratory at Queen’s University.

Who can participate? In the online study Investigating Depressive Symptomatology in Adolescents with ASD and ADHD we are investigating the overlapping symptoms between depression and developmental disorders such as ASD and ADHD. We are looking for adolescents both with and without depression and with and without ASD or ADHD between the ages of 12 and 18. We will also have the adolescent’s caregiver participate in the study. Please note, if your child is non-verbal we would still love to have you participate in the study. We will just skip their portion of the questionnaire.

What is involved? Adolescents will be asked to complete a questionnaire about their feelings over the last two weeks. This will take approximately 30 minutes. We will also have the caregivers fill out a questionnaire about how they believe their child has been feeling over the past two weeks. This should take approximately an hour. Due to COVID-19 restrictions, the study will be taking place over a video conferencing program called Zoom.

For participation, the participants and their caregivers will each be provided a $10 Amazon E-gift card.

Interested in participating? If you’re interested in participating please reach out the ASD Studies Laboratory by email or by phone.

Email: Asd@queensu.ca

Phone: 613-533-2894

Deadline: We began recruiting participants in June 2020 and will continue recruiting participants until March 2021.

If you have any questions or concerns, you may contact the Principal Investigator, Lindsey Wilson at asd@queensu.ca

Research Opportunity for Canadian Families of Children with Autism Spectrum Disorder (ASD)

Researchers at the University of Manitoba are looking for families of children with ASD who are interested in participating in a new and exciting study! We are conducting a research study to collect information about Canadian families’ experiences obtaining a diagnosis of ASD for their child.  We need your help to gain richer insights into families’ experiences as they navigate the diagnostic process. In particular, we are interested in hearing from families whose diagnosis was delayed (i.e., a diagnosis at the age of 5 or older). To accomplish this, we invite you to participate in a brief survey regarding your experiences going through the diagnostic process. 

Who is eligible?

Parents of children (ages 5-15) who were diagnosed with ASD at the age of 5 or older are eligible to participate.

As a thank you for participation, you will have the opportunity to enter a draw for 1 of 3 $100 Amazon eGift Cards!

If you are interested in participating in this research project, know somebody who might be interested, or would like to learn more, please contact Amber Yaholkoski by email: yaholkoa@myumanitoba.ca

This research has been approved by the Psychology/Sociology Research Ethics Board.

 

Mental Health and Parent-Child Relationships Among Parents of Transitional Age Youth with Autism

This research is hosted by the University of Guelph

This study aims to deepen understanding of the lived experience of parenting a transitional age youth (16-24) with ASD, particularly focusing on parental mental health and wellbeing, parent-child relationships, and co-parenting relationships.

Who can participate: Parents or primary caregivers of a transitional age youth (16-24) with ASD that have shared caregiving responsibilities and live in Ontario.

What is involved: You will be asked to complete an online survey about your experience(s) that should take approximately 45 minutes to complete. You will be asked at the end of the survey if you would like to be considered for a follow up (virtual) interview. Please note that agreeing to be considered for the interview does not mean that you have to participant, nor does it guarantee that you will be selected. Participation in this study will not impact any services that you may be receiving.

As a thank you for your participation in the survey, you will have the option of entering a draw for 1 of 5 e-gift cards worth $25 to a Canadian store of your choice. Participants who take part in the follow up interviews will receive an additional $25 honorarium.

We encourage participants from all regions of Ontario to participate and both parents/caregivers within each family!

Deadline: Recruitment for the survey will begin October 2020 and will close January 2021.

Interested in participating? If you are interested in participating, the study can be accessed through the following link: https://uoguelph.eu.qualtrics.com/jfe/form/SV_0dM7mQ2KttilpGZ

This study has been reviewed and received ethics clearance through the Research Ethics Office at the University of Guelph (REB# 20-06-018).

If you have any questions or concerns, you may contact Samantha O’Leary at solear01@uoguelph.ca

A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD

Have you/ your child been diagnosed with an autism spectrum disorder? Do you/ your child have social difficulties and/or repetitive behaviours?    Are you/ your child located near Toronto, Kingston, Hamilton or London, Ontario? You/ your child may be eligible to participate in a clinical trial of a medication called arbaclofen!

Who can participate: Children and teens between 5-17 years of age with a diagnosis of an autism spectrum disorder (ASD, autism, PDD-NOS, or Asperger’s syndrome)

What's involved: The trial will last a total of 18 weeks (4.5 months) and involves taking either arbaclofen or a placebo, as a meltaway tablet, 1-3 times per day for 18 weeks. You and your child will first be asked to come in for a screening session; through talking with you/ your child and completing some assessments, we will determine if you/ your child meets eligibility criteria.

Visits will occur at participating sites: Holland Bloorview, Queen’s University, McMaster University or Lawson Research Institute.  Visits will take place every 2-4 weeks while you/ your child are taking the drug or placebo. This study also has an optional continuation part, which means that all participants will be able to take arbaclofen at the end of the 18 weeks. The same tests and procedures will be followed that were followed during the main study.

The ultimate goal of this study is to find out if arbaclofen is helpful in improving social function. 

Participants will receive a small token of appreciation in the form of a $20.00 gift card to thank them for their time

Deadline: The study began in January 2019 and recruit until May 2021.

Interested in participating? If you / your child are interested in participating in this study or have additional questions, please contact the site closest to you and the study staff will get back to you shortly. 

Toronto: Leanne Ristic at 416-425-6220 ext. 6321 or lristic@hollandbloorview.ca

Kingston: Jennifer Lalonde at  613-548-4417 ext. 1111 or jennifer.lalonde@queensu.ca

Hamilton: Alessia Greco at  905-525-9140 ext. 21261 or algreco@mcmaster.ca

London: Ahsan Ahmad at 519-685-8500 ext. 74906 or ahsan.ahmad@lhsc.on.ca