Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.) The text of each posting is presented as it was submitted by the researcher.

Please see the research participation opportunities below. 

Ready2Work Phase 2

In collaboration with the York ASD Partnership, we developed a website to support the employment needs of people on the autism spectrum.

The goal of this project was to develop an online platform that is both functional and user-friendly. 

If you are a self-advocate with ASD who is interested in or has attempted to secure employment, a caregiver who has supported someone with ASD who is interested in or has attempted to secure employment, or a professional who supports people with ASD in vocational or employment services, we would love the opportunity for you to provide feedback on our online vocational/employment platform.

If you choose to participate, we will ask you to join us for a virtual research session where you will be asked to complete some questionnaires, explore the website, and provide feedback about your experiences with it.

This session will take approximately 60-90 minutes and will be booked at a time convenient for you. As a token of appreciation, we will send you a $25.00 gift card for either Starbucks or Amazon.

If you would like to participate and/or you would like to find out more about the Ready2Work Research Project, please email Jean Phan at jp17ka@brocku.ca  

Thanking you all in advance,  

The Ready2Work Team

Measuring physical literacy in adults with intellectual disabilities using the PL-C Quest

I am currently recruiting adults (18+) with an intellectual/developmental disability and their parents/guardian to complete a survey about their physical activity and movement.

The survey itself is 30 questions long and asks questions all about how an individual feels they move and engage in sport. Question range from how do you feel about your ability to jump/leap/skip to how much do you like playing games in groups. The purpose of this project is to identify whether adults with intellectual/developmental disabilities are able to appropriately gage their ability level.

All of those who complete the survey will receive a $10.00 amazon gift card. The total time requirement for participants ranges from 15-30 minutes.

For more information and to participate, please email Laura St. John at l.stjohn@mail.utoronto.ca

The study has ethics approval from the University of Toronto Research Ethics Board (Ethics Protocol #40698).

Understanding camouflaging in autistic adults

Inviting Autistic Adults for an online research survey to understand how individual and social factors influence camouflaging/masking and well-being. 

The survey will take around 45-60 minutes of your time. 

To register your interest, please go to https://tinyurl.com/uwacamouflagingstudy

Investigators: Assoc/Prof Iliana Magiati & Dr Diana Tan (email:uwacamouflagingstudy@gmail.com)

Understanding Perspectives on Health Behaviours Among Parents of Children, Youth, and Young Adults with an Intellectual Disability or Autism

Researchers from York University are looking for parents of children, youth, and young adults with an intellectual disability or autism to participate in a study investigating parental perspectives on health behaviours. As a participant, you will be asked to complete a series of questionnaires. You will receive a $25 honorarium for your participation distributed across the three stages of the study.

If you are interested, please complete the following Screening Questionnaire to confirm your eligibility: https://www.surveymonkey.com/r/DMYMPBT

For further details: Please contact kdisim@yorku.ca

Understanding experiences of suicidal thoughts and behaviours among autistic youth

Are you an autistic young person/youth with autism who has experienced suicidal thoughts or attempts in the past? You may be eligible to participate in a study to help us understand the experiences of thoughts or behaviours related to suicide if you are:

  1. Diagnosed with autism
  2. Between the ages of 13 and 24 years
  3. Have experienced thoughts or behaviours related to suicide

You would participate in two online interviews about your experiences. Interviews will be done together with your parent/guardian.

To participate or for more information, please contact Patrick at patrick.jachyra@camh.ca,  416 535-8501 ext. 37829

Study participation is completely voluntary, and you will be compensated for your time.

If you, or someone you know has suicide-related concerns, please call the Canada Suicide Prevention Helpline: 1-833-456-4566.

You can find other crisis and support services at: camh.ca/en/suicide-prevention/get-help For more information about programs and services at CAMH please visit www.camh.ca or call 416-535-8501 or 1-800-463-6273.

Measuring brain synchrony between children and their parents while drawing pictures together

Does your child enjoy drawing pictures and tablet computer games? Consider participating in our study! We are understanding how parents and children synchronize brain activity while drawing pictures together. This will be done by measuring your brain activity using near-infrared spectroscopy (NIRS), which is non-invasive and has no known risks, while drawing.

Who can participate? Children aged 7-18 (with or without ASD) living in the Greater Toronto Area and their parent or primary caregiver who is also willing to participate. Participants must have mobility of their dominant hand/torso and stay focused on a task for at least 2 minutes. You must be able to understand English and have normal/ corrected-to-normal vision/hearing. Adult participants must have no history of neurological, cardiopulmonary, respiratory, or drug/alcohol related conditions as well as traumatic brain injury or concussion.

What’s involved? You and your child will participate in one, 1-hour session at the Holland Bloorview Research Institute. Besides drawing pictures, you will play ‘Simon Says’ to help us understand how body movements affect brain signals. You will also be asked to complete qualitative questionnaires that measure you and your child’s social abilities. Findings from this study could further our understanding how ASD affects social processing areas of the brain and may point to new biomarkers for diagnosing. You will be given a small gift card as a token of appreciation for your time.

Interested in Participating? If you are interested or have additional questions, please contact Karly Franz at kfranz@hollandbloorview.ca.

 

Recruitment Start Date: June 23, 2021

Recruitment End Date: September 30, 2021

Healthcare Access Survey - Autism and Official Language Minorities

Dr. Aparna Nadig's pop lab invites you to take part in an online survey on healthcare access for people on the autism spectrum!

Our Goal: To learna bout possible barriers to accessing healthcare services experienced by people on the autism spectrum and their families

Who? Adults (18 or older) in Canada who:

  • self-identify as autistic and can complete a written survey
  • care for or have cared for, a family member on the spectrum (including non or minimally speaking children and individuals with all levels of language and intellectual ability

What's Involved? 

  • Online study: need to have a computer and internet access
  • Complete a survey that should take about 30-50 minutes
  • A $15 gift card will be offered for your participation

If you are interested in participating: please email poplab.scsd@mcgill.ca using the subject line: Healthcare Access Survey

Investigating the role of camouflaging in Autism Spectrum Disorders

The Queen’s Visual Cognition Laboratory is seeking Autistic adults (e.g., Autism Spectrum Condition/ Disorder, Autism, Asperger’s Syndrome, Pervasive Developmental Disorder) for an online study on their lived experiences navigating social situations. This study will involve viewing videos and answering questions about the videos, your personal experience navigating social interactions, your mental health and some basic demographic information. Participants must be 18 years of age or older and be able to read and write in English. The study takes approximately 45 minutes to complete. To participate, click on this link https://mili2nd.co/i6zb. Prize draws (1 in 25 chance for a $25 gift card) are available.  

For more information about the study, please contact the Queen’s Visual Cognition Laboratory at qvcl.sub@gmail.com. Be sure to mention the FETTUCCINE study. All inquiries are completely confidential. 

The Effect of a Parent Mediated Toilet Training Program on Children's Toileting Skills Delivered via Telehealth

Looking for Caregiver and Child Participants

Child must have a diagnosis of autism, between 2.5 – 8 years of age and repeat a minimum of 2 spoken words or actions Child must reside with the primary caregiver for the full duration of the 12 - week study

Time commitments for at least one caregiver:

  • A maximum of two, 2-hour telehealth training sessions which includes video recording of participants while practicing the steps with a doll (that you could keep), to then transfer the skills with your child
  • A minimum of 2-hours of support on the first day of training your child
  • Once a week, 20-minute telehealth follow-up consultations, for a maximum of 12 weeks 
  • Supporting your child daily as the primary caregiver, for a maximum of 12 weeks
  • Talking and forwarding data daily

Materials required:

  • Access and experience in using a computer/iPad with a built-in camera, email and internet speed of 25 Mbps

If interested, please contact:

Natalie Paquet Croteau, M.A., BCBA
1-705-618-4448
or by email at: ncroteau@ego.thechicagoschool.edu

The Chicago School of Professional Psychology

Organizational Benefits of Neurodiversity

Investigators: Lorne Hartman & Braxton Hartman
Research question: Do employees with autism bring new perspectives to employers that enhance organizational performance?
Eligibility requirements:
- Are you on the spectrum?
- Do you work at a job more than 5 hours per week?
- Are you over the age of 18?
- Do you have a stable internet connection?

If you are interested in participating and meet these requirements, follow this link to the survey:  Qualtrics Survey | Qualtrics Experience Management 

The survey will take 20-30 minutes to complete.

If you have questions, contact us at: lhartman@schulich.yorku.ca

Cognitive Rehabilitation (Mega Team) and its effects on emotional and behavioural regulation in ADHD, ASD, and CHD

The Department of Psychiatry at The Hospital for Sick Children (SickKids) is undertaking an exciting new research study where we will be looking to see if a video game can help improve behavioural control and working memory in kids. 

Who Can Participate?: You can help us out with our study if you are/or have a child with a diagnosis of either Attention Deficit Hyperactive Disorder (ADHD), Autism Spectrum Disorder (ASD), and/or a Congenital Heart Disease/Defect (CHD), are between 6-12 years of age, willing to come to SickKids for 3 study visits, and are willing to play the video game at home for 5 weeks. Compensation will be provided. 

Interested in Participating?: If you are interested in participating in this study and/or would like more information, please contact Taha Arshad.

E-mail: mega.team@sickkids.ca

Phone: 416-813-8210 

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

The goal of this study is to test two versions (group coaching & self-managed) of an online program designed for parents of children with neurodevelopmental disabilities who are dealing with behaviours that negatively impact the activities of daily life. Developed with parents of neurodiverse children, the program consists of 11 skill-based sessions with demonstration videos, audio clips, exercises, a resource webpage and a Parent-to-Parent online group.

Who can participate: Primary caregivers of children between 3-14 years old who are diagnosed with Autism Spectrum Disorder and would like help managing behaviours that are having a negative impact on the activities of daily life.

Visit www.crfh.ca/neuro for more details.

You may complete up to 2 hours per week of the online program and group coaching for 11 weeks. Participants will also complete online questionnaires and a telephone interview 3 times during the 10 month study. A $50 honorarium is provided for completing each of the questionnaires (up to $150).

To apply, go to: https://mystudies.ca/studies/neuro

Recruitment will continue until June 2021. If you have any questions, please email sf.neuro.study@iwk.nshealth.ca

This research is hosted at the IWK Health Centre and has been approved by ethics boards at the IWK Health Centre and McGill University.