Seeking Participants For An Arts Based Study About High School Students and Autism
Shona Casola, a McMaster University student, is seeking participants for a study she is doing about high school aged students (15-20 years of age) who are diagnosed on the autism spectrum. This research is part of her Master of Social Work program. The following is a brief description of her study:
Parents spend a great deal of time and energy figuring out that their child is diagnosed with Autism Spectrum Disorder. This diagnosis opens doors for funding, services and understanding into the differences their child presents with. There is much literature that speaks about the challenges parents encounter when negotiating this diagnosis with their child, as well as the emotional implications, but little literature exists that tells of the experience of the children, youth and adults who are labeled as being on the autism spectrum.
This study will engage youth in a full day program. A morning session creative arts project will allow participants to explore their experiences of living on the autism spectrum at school. Lunch will be provided and then the afternoon will engage participants in a discussion with same-aged peers to share their experiences and tell their stories. Both the morning and afternoon session will video and audio recorded for data analysis purposes. Families will be invited to attend the last 30 minutes of the program to view the participant’s art before they take it home at the end of the day.
To participant in this study, individuals must;
- Attend a publicly funded high school and receive support from a TA, EA or SNA no more than fifty-percent of the day
- Be aware of their diagnosis on the Autism Spectrum and be comfortable speaking about it, and the implications it has on his/her life
- Experience minimal anxiety and / or minimal behavioural reactions to anxiety in new environments
If you are interested in getting more information or your child participating in this study, you can contact Shona by e-mail at email@example.com or by telephone at 289-200-1609.
Shona has worked at Autism Ontario in the Potential Programme in Simcoe, York, Durham, Peterborough and Toronto Regions since 2006. If you choose for your child to participate in this study, this will be completely separate from Shona’s role at Autism Ontario and will have no implications for the services you or your child receive from your local chapter or the Potential Programme at Autism Ontario. No staff at Autism Ontario, apart from Shona, will be made aware of who participates in this study. All study data will remain confidential and your child can choose to withdraw from the study if he or she no longer wishes to participate.
A copy of her Letter of Information and Consent Form is attached to this message, which can provide you with further details about her study.
In addition, this study has been reviewed and cleared by the McMaster Research Ethics Board. If you have any questions or concerns about your rights as a participant or about the way the study is being conducted, you may contact:
McMaster Research Ethics Board Secretariat
Telephone: 905-525-9140 x23142
Gilmour Hall – Room 305 (ROADS)
CLICK HERE to access the Letter of Information and Consent Form